I think what’s listed are core features in terms of mangement. Personally spasticity is a big issue for me that’s not really covered in any...
Following up on this I decided to trace the evolution of the severity definitions used in official UK literature because I do not feel they are...
Ah well if you are right, it will probably be announced on ME awareness day. Dr s has said he’s not aware of any UK trials regarding LDN so I’m...
Thanks I didn’t read right through. I’m surprised it is just top up funds as Dr Charles Shepherd has been hinting at an exciting drug trial and...
looks like the intention is set. What a ride they've taken us on. It didn't take three years for the funders to decide to offer more unspecified...
I get a ghastly poisoned feeling when I try to sit up which I have to briefly every day to put a bra on I know of no treatment. I guess it's for...
the ME association is funding a drug trial of lOW Dose Naltrexone on those with long Covid for three months who meet ME Criteria...
Except the glaring error of this NICE definition that is too restrictive, based on a paper from the 1990syet copied and pasted into UK literature...
I think that this post on Action for ME sums up the position of many patients who've been waiting for progress a long time and met an unacceptably...
More here: [MEDIA]
To me it feels like something is missing and another system has had to step in and take over but that system can’t let you relax in any way....
this reminds me of when you watch Budget TV & they try to show you how you can have a good time or make things without spending any money, are...
I think stimulants are primarily if you don't need to rest much during the day , if you need to you can't as the on switch is on so I think in MS...
This style of medicine really thrives in a UK style state health system where there is no patient power . I can’t see her working in any type of...
I have always thought a national charity that has that name and now uses that bold new logo should take on the job to lead campaigns yet Action...
This afaik was the joint conference with the Medical research council. The beginning of the collaborations. I cannot find much about it only...
Surely, if the care and support plan, aside from most areas providing nothing in the way of care of support, were so central to how pwME were to...
This journal article listed on Twitter and archived here contains most of Suzanne's section on long Covid, where she says a lot of it has to be...
Interesting about his sister
ME/CFS at about 57 000 claimants was just above Multiple Sclerosis, which has a helluva more focused research effort, although it says these...
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