NHS? Which still puts emphasis on tiredness. The ME/CFS composite term serving us well again in the media.
How is government committed to ensuring quality services when they’ve given ICBs free rein to commission or not ( as with m.e) and 1/2 of existing...
You are being fair and the letter is good but I don’t think that the MEA have been consistent in their calling for physician led services, which...
Further information about this society from the The ME association https://meassociation.org.uk/health-social-care/updates/the-post-covid-society/...
posted by The ME association, who are a member of this organisation. 2025: Clinical Post Covid Society Conference for clinicians, researchers and...
Yet to see independent analysis regarding abolishing nhs England (which hasn't served pwME at all) but interesting that a main reason was the...
I don't think anyone Who's been managed badly and become severe doubts that bad management & exertion is why they got severe. We know and warn...
The ME association infographic for primary care...
Optimal clinical pathways for adults with neurological conditions have been developed. Links to various conditions contained on one page....
& if they don't? What if all the commission boards decide that m.e in never-ending tough times isn't their priority? Is that just okay? What has...
The APPG report on nhs services in 2010 said: NHS England in its only stock take I am aware of , in 2025 are reporting problematic variation,...
I can’t as I’m not a member and this was just posted as an excerpt for wider access and is presumably for members only but maybe other people can...
Which they are now going to be doing. New for this org, MEA, & very overdue, too late for me, from a charity that's seemed incapable of...
Clearly if nath / NIH had bothered to fully believe in & investigate this "Chronic Fatigue syndrom e" In the decades before now, these new health...
I couldn’t see this here, regarding the DHSC delivery plan: “Observations from and following the final meeting of the UKCRC ME Research Working...
Afaiu, the protest regarding NIcE was regarding the set up of the panel. This was in a targeted way from #MEAction only, so was unsucccessful in...
I think Calling the illness m,e versus Chronic Fatigue syndrome is Something probably all those who are severely affected do. I’m not going to...
with with no funding, it can't be anything other than dreadful. the lives of m.e have been too wasted for them to keep taking time for reports...
Yes, the NICE guidelines wording will have been carefully argued and presumably the paragraph "services may include:" followed by a whole list of...
The Nice guidelines are not based on the medical care model tho?, or physician-led services so the two things are contradictory? We have either...
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