Was there a report from #MEAction on that meeting? We always think if we could meet these people and make the argument things would change. I...
That’s such a Wesselyian quote. No doubt like former colonialists he thought to claim and conquer that territory. He would say the natives too...
Yes pretty much total crap. You can see the circles she mist exist in to be so out of touch with the biomedical approach to the illness and...
I think a point VES is trying to make might be that it’s not science alone that can change the reputation of the community so whilst what you say...
“ Edited version comment Sticking my head up in a risky way, I think Valerie does have a point regarding advocacy which is difficult to...
Interesting the severe care has more votes than referring on. I feared it would come further down with a top 3choice system. A survey on the value...
I’m foggy today and struggled to see the points made, although I’m sure they were. She said PR isn’t enough but the narrative itself has to...
Wasn’t that reserved more for women ? It’s also odd the article doesn’t mention the ME and IBS possibilities, perhaps because they don’t...
“While hypochondria undoubtedly played a part in Darwin’s misery“ How on earth can they know that ! Just think if he’d been around today he...
I have had one sided symptoms, on the left side I started to loose feeling etc I could see the limb but hardly feel it, for me it was ME and it...
I haven’t listened yet but there’s a big difference between being normal and therefore wanting normal sensory stimulation and being so ill you...
One point though, despite to us the progress painfully inadequate, in the last five years were miracles that were probably not envisaged by...
Yes collaborating mainly with the establishment The international advocacy that they seemed to begin might be good but it’s at odds with their...
I’m actually in the severe category and going to start using the term energy crisis. I’m not limited in energy , I have a borderline critical lack...
I think their success of last year was low, their aims for this next year is low also. Taking in Ayme allows them to puff up the portfolio with...
Unfortunately I think the world isn’t shockable on ME , even if people hear this it will be filed under well it’s not that serious they get...
The review itself might be good and needed but it was galling to see wessely able to be involved in such a thing, to great acclaim and praise ,...
I thought this was good
She’s fixed on her talking as treatment ideas then.
Carol is our Meryl Streep, a wonderful orator and advocate.
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