Exactly, for many this isn’t an illness you can live reasonably with. A request for significant progress over the last thirty years was not...
The problem with the nih , as the thread shows is that they just practise neglect and ignore patients, they have ignored largely all the patient...
B But your implied point is the reason for this is that uniquely to ME, sufferers with it don’t donate but rely on government, unlike other...
Do we need to re enact the method, animal or human, to study the end result. We know that an infection seems to cause lasting changes, can’t...
But other illnesss don’t have our PR issues. Cancer for eg I think funds loads of its own research because it can raise lots of money. The medical...
If the nih and MRC approaches aren’t working something had to change. I can’t accept the well wait twenty years as little bits of research slowly...
Thanks I can’t handle pressure so prefer to stay as I am, I think #MEA are excellent though and hope they can continue to grow and gain leverage :)
Does this mean retroviruses are back on the table?
I didn’t think the autoimmune stuff could come from the mea. I also am not sure dr Shepherd would have spoken like that about CF. Key things to...
As patients obviously we aren’t kept very informed or involved and just have to wait for drops of information, it sounds like insiders already...
OMF /Ron Davis announced the something in the serum a couple of years ago. I think it’s a very important finding and glad researchers are trying...
Sonya doesn’t do much aside from CMRC stuff recently it seems and that’s also cooling off as there’s no conference next year and they have many...
MH category and cLassification is there for a reason. Someone turns up in A & E, knowing they have serious mental health issues, or serious...
That’s just inaccurate from the start because whilst not yet explained it’s not a mystery. Mystery in peoples minds equates to nothing known ,...
One thing I think is strange AFME haven’t covered this on Facebook, they usually publish media coverage for discussion. I looked on twitter and...
Great idea. I’m too severe but think this is really positive action.
I don’t necessarily think the smc needed any reason to promote the Pariante study other than it was MRC funded, a kings study and not too out of...
Well done John you were superb. Great to hear a really informed patient so the interview with Carmine pariante was much more incisive. I just...
This post and the following have been moved from this thread: Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy...
I’m guessing the MEA won’t write much critical given It’s a CMRC members research and MRC funded.
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