When I said to the doctors I wasnt getting sleep on an nhs ward, bright fluorescent light on till midnight, old ladies toileting through the...
ah I see it’s those people from uk collaborating, which is great. A shame uk couldn’t get them involved but great America could. This was a recent...
I have no knowledge or and have heard no announcement on this so this is completely new to me. Is that right what he says that MRC have put a...
Regarding MRC being reluctant to intervene and set a precedent. Well it did do so for HIV several years UNTIL it was felt the field could progrsss...
This might have been more useful in the 90s when there was debate as to whether to diagnose us at all and if it was harmful too. Perhaps that...
This is good but i don’t really understand Iimes direction now. I asked them what they were doing with the money originally raised for a rituximab...
There is the possibility that uk charities have a lack of people to give funds to even if they had them. I don’t know if that’s been a factor in...
It’s versus MS that I think is the most interesting comparison because of age affected and disability. If half of pWME aren’t diagnosed that...
which ones ? Cancer research obviously and it’s natural cancer can raise funds anyway, potentially terminal, common we are told etc. age uk would...
I don’t really understand why we are comparing ME with intellectual disabilities. From my limited experience with some people in that area they...
But for comparable conditions we are so much worse. ME isn’t like intellectual disability, some with autism actually want it celebrated not...
That’s a good point. Yes I think so we should, I actually think that money can sometimes be raised if people see it going to a specific thing they...
But that’s not something we as patients have been able to prevent the past decade, it’s still there and as long as it is there - caused by the...
It’s not deserving just because we can’t raise ourselves it’s because of the levels of disability, cost to economy, affecting people in prime...
I didn’t know where to post this I just did a bit of easy research on charity incomes via http://beta.charitycommission.gov.uk/charity-search/...
Is there evidence there’s too much adrenaline? A little bit of deconditioning doesnt cause the ME symptoms, I wasn’t seriously decinditiond...
What I quoted was from a blog written on the 2013 CMRC launch when there was supposedly work streams and priorities. As new ones are launched I...
From 2013 https://www.meassociation.org.uk/2013/06/uk-research-collaborative-means-business-think-piece-by-simon-mcgrath-4-june-2013/ “Getting...
So what happened to the working groups that were set up in 2012 ?
Well who are they trying to please who are they trying to kid
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