I think the issue is NICE are starting from the historical U.K. establishment position where CFS is viewed as a broad umbrella, unknown and...
This might have worth, they’re presenting it as a helping hand, more like you might call on a friend. People with me can be hit as many friends...
Yes why is Julia newton there. Vincent Deary is not good, I’ve just been reading the kings College London fatigue service website which hasn’t...
Yes it doesn't sit with what we know, especially when kids home schooled can struggle with just doing an hours study per day and that must go...
From MS society , they’re just announcing 11 new funding projects totallying £2m. One project is the biological cause of fatigue...
In paediatric Chronic Fatigue Syndrome (CFS), effective psychological interventions have been developed based on psychosocial factors associated...
I find this infuriating, especially when real brain research has be so under funded in ME. It’s only in the vacuum of solid proven abnormalities...
Thanks yes I’d forgotten he said certain brain areas associated with sickness response Were affected in us , probably different with Parkinson’s...
Adolescent and parent factors related to fatigue in paediatric multiple sclerosis and chronic fatigue syndrome: a comparative study Susan Carroll...
One question, I saw he said the sensitised microglia could be set off with small activity, which to me sounded like PEM. However in MS or...
Saw this on Facebook which ties in. A development in Parkinson’s understanding with a drug trial proposed with a pill to “cool down a brain on...
Thanks for sharing that, he’s a very good speaker and the research looks great. He seems to think we need pet scan research but hasnt funding. I’m...
I’m thrilled OMF are still successfully fundraising on top of the good work already ongoing. I also think there’s a snowball effect with more...
Wessely likes his ideas and studies things he think will fit. He’s not really a biomedical scientist more in interest , I don’t know ,...
https://www.bbc.co.uk/iplayer/episode/b0brzl3w/wwis-secret-shame-shell-shock Interesting and moving in itself, interesting in parallels I saw...
Key feature is PEM, not the CF they have plastered on the screen. @as said, PEM , “if you do too much all of the symptoms get worse”. If only we...
Tbh , I’m not sure it was fair of NICE to say that re. Limiting freedom of speech on GET/ LP etc as a charity representative, Is Gabrielle...
No. I have a lot of mixed about this so I’m just putting up various thoughts, not opinion. There obviously has been a lot of behind the scenes...
So what will the community response be now? Is the William weir posting at the very end sweetener/concession enough? Are we still going to send a...
NICE and some of the stakeholders were most anticipating of Esther crawleys two studies which will be published as the main new evidence. How do...
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