This is great. Has #MEACtion made any noises about this at all? Pretty baffling that a charity, whose raisin d’etre was once obtaining missing $$$...
Not really, if you’re just put on a general ward. Which most are from the start - there are often skylights and strip lights and Wards are busy...
The very severely affected case In the news is in Lancashire. BACME list 2 services for Lancashire - one is called CENTRAL LANCASHIRE MOVING WELL...
I think it’s clear more has to be done. the NICE guidelines have existed for some time, they are not stopping disbelief and harm and really why...
Not bad, needs to convey PEM & risk of harm at any exertion. It was probably written in less than five minutes too.
The ME association forgot to notify in advance too.
The ME association today Dr Charles Shepherd: Edited. They have had since October 2021.
I am not clear whether the update constitutes the anticipated March update or not? The charities spokeswoman said on Facebook a quote that it’s in...
Moved posts edited. it has been indicated on twitter that the NHS website has already had a rewrite as part of the DHSC plan. What we now read...
The ME association xmas appeal was for advocacy and information rather than research. I assume that has been used to cover more of these costs....
They were available to download even if some were paid for - it wasn’t just so they could be sent but an income stream.
it blurs over how in the strong difference of opinion, what clinicians and patients “now” agree on is that patients and their advocates/ most...
Posted in 2020!
This is a cheap way of drawing attention And making noise. Animal welfare groups use this method too. This along with billboards and petitions...
Blog/ commentary A Very British Consultation... Response to the DHSC's ME/CFS Delivery Plan [IMG] LONG COVID ADVOCACY...
He was part of the ME expert group too, or at least attended the workshop in 2009...
ME Association announces three new research grants, Oct 2019 | Science for ME...
OMF in their new may fundraiser info say they plan to do two pilot treatment trials of kynurenine & mestonin. I think that the Later i am not...
I took Nadh many years ago when there was a lot of hype, no benefits, I read elsewhere this week about b3 benefitting something else potentially...
There are no other great options if you have bad or progressive MECFS though are there ? Atleast it is a treatment study and perhaps with the...
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