The widely used total cost for m.e in the UK is £3.3b although I think that earlier studies suggested double that (I couldn’t understand the...
In the U.K. the dominant name in official establishment nhs circles is more Chronic Fatigue Syndrome alone I feel. Certainly I’ve never met a dr...
Afaic if a person had prior diagnosis of M.E, and given this type severity rarely happens over night, they shouldn't be given this diagnosis...
That’s interesting. It might be a severity thing. When I became fully bedridden I started to loose sensation /awareness of my limbs , so I...
Are you hoping them to commit a figure and if so multi millions ? Given that individually European governments are behind America, Australia,...
Wasn’t there an APPG meeting due this month? You’d think this type of thing could be arranged virtually via zoom etc
https://link.springer.com/article/10.1007/s00296-018-4213-z interesting to see just how far graded activity / exercise is being trialled &/ or...
Thankyou for saying this. The lack of time frames aNd urgency is both apparent and unacceptable. I note that for dementia the G8 leaders have a...
I don’t know if this has been discussed but Simmaron are still doing , imo, good stuff like this treatment trial...
How nice, the GP has devised a way to fully rehabilitate a group debilitated by a new virus with just a few basic interventions
Ah cort said “may” not, I checked. Wow, that’s pretty terrible, i hope that the Nih are being made aware of discriminatory attitudes
Cort said these applications didnt go to the more M.E aware panels which is probably why the unacceptable response, I think that lipkin Was...
I’d like to know what specifics around research #MEAction U.K. are ‘working towards”. I don’t know what number #millions missing this is but I do...
These are two other major SH CFS interviews for context...
woo let’s erase the fact he was the appointed chair of the mrc ME expert group since 2007. The CMRC was anything but starting afresh. silly...
I would imagine so.
One thing AFME Sam said on Facebook was they were open to suggestions of clinicians to get involved. The problem is , with newton presumably not...
they want the engagement, with it, we aren’t keeping them on their toes necessarily but dancing to their tune, validating their projects and CFS...
The communication of the objectives have been poor and when I asked what will be the focus, the reply was that’s up to the steering group AFME...
I’ve been engaging with AFME on their Facebook post. I’m still full of reservations /questions about the purpose and use , especially in the...
Separate names with a comma.
