thanks @Dolphin i read that as icc. why did my brain do that? the first version of the iacfs/me one said infections were not an issue and it...
omf sent this out: vvv NEW GUIDELINES FOR DIAGNOSING AND TREATING ME/CFS A resource for clinicians and patients. The U.S. ME/CFS Clinician...
these notes are of global import, not just the uk. all off the top of my fogged head. this is a horribly sloppy post. i' prefer it not be...
> Public comments received in response to a Request for Information from the NANDS Council Working Group for ME/CFS Research are now available:...
what follows is a primal scream expressing despair at the /state/ of our community and our charities [not the writer or any forum members or any...
appears to make it seem that things that exist do not exist. approximately like this: 1] not stated [but true]: x exists. 2] not stated [but...
my opinion is possibly opposite to your opinion as expressed here. assuming i understand yours. i agree that in principle activity intolerance...
yes. a major question in the op is whether we are focusing too much on activity, perhaps merely because that, out of all of the intolerances, is...
great idea. i wonder if it can be expanded to stimulation overload and orthostatis intolerance and more? karina and many more were involuntarily...
i am not sure at all, but are we talking about a mainstream newspaper that published the article handed to a reporter by the smc, where...
idk if this is going to be useful: what definition of comorbidity are we using? is everybody on the same page? i find that it is often useful...
for clarity, i want to confirm whether you mean 1 or 2 here. 1) initial *infection* -- i.e. the individual cases' disease progression from the...
this might be significant for jama publishing it. isn't jama the journal that refused to publish on the disease? or has the jama (japanese for...
i just want to add that this report could in principle launch the movement we need to launch. many of the attacks on our population only have...
this is a potent weapon. it could punch through a lot of denial and propagandized ignorance. even the charts alone TELL A STORY! === if the...
http://thekafkapandemic.blogspot.com/2012/09/the-word-invisible-is-problematic-in.html
Whitney has two messages for the m.e. community, as reported by Jen [MEDIA] the above shows as a blank square when js is turned off. it is...
thank you to the activists. i am in awe. what is the frequency of senate-only resolutions of this type? can we assume this is not the type of...
i should definitely not be posting now, but: what if we use "level 1", "level 2", and so on, instead of either descriptive labels or stages? ===...
1. i published one idea here: http://thekafkapandemic.blogspot.com/2013/01/an-objective-severity-scale-for.html this is based on number of...
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