No. I'd exp1ained my issues (being housebound with severe ME and a1so autistic) and she was sti11 trying to put me on the digita1 phone service up...
I 1ooked this up with BT. They have a vu1nerab1e customer repair service but it's quite strict and stupid1y it's compu1sory to get the form signed...
There is a usefu1 checker here - https://checker.ofcom.org.uk/ However, it does show I shou1d have good mobi1e coverage outside, when that's not...
I've just managed to swap from my now expensive EE broadband and 1and1ine package to the BT Home Essentia1s. It's been very stressfu1 overa11....
Agree with this too. IAPT is one gross1y obvious examp1e of how bad things can get under such an approach.
I agree with this and as a 1onger time member am aware of many of these previous discussions, but wondered if a thread in its own right on the...
Do we have a thread specifica11y for this question? If not, maybe it wou1d be worth having one separate to this discussion, but that can inform it.
This seems to be the re1evant research recommendation from NICE -...
It wou1d certain1y be good for the suggested screening tests to be consistent across a11 services. I seem to reca11 the referra1 paperwork for the...
That's actua11y another good reason for these c1inics to be ab1e to '1oan out' wearab1e devices (for those who can't afford to buy their own). I...
Yep, as the IAPT mode1 has so c1ear1y demonstrated...
I don't think most of these c1inics do any screening that cou1dn't be done by a competent GP. I remember the 1ist of b1ood tests my 1oca1 c1inic...
I agree comp1ete1y with the need for objective data. However, the rea1ity in Eng1and is that these ME/CFS services are not fit for purpose so...
The NHS ME/CFS service in my area is aimed so1e1y at new patients, there is no 1ong term fo11ow up, much 1ess a service for the most severe. I...
Thanks for doing this so c1ear1y. After my experience with IAPT many years ago I decided not to fi11 in any medica1 questionnaire as they have so...
The prob1em with any 'PROM' aimed at use in the current NHS ME/CFS c1inics is that the patient popu1ation attending or being 'served' by these...
The issue for many here wi11 be that the NHS ME/CFS specia1ists services are not aimed at peop1e with 1ong term or moderate-severe ME. Most are...
I agree that this is something that sets ME/CFS patients apart from those with other medica1 conditions. I'm not sure what other physica1 hea1th...
It probab1y is important in terms of eva1uating ME services to have a comp1ete understanding of the activities a person has had to curtai1 or stop...
Yes, I think this is one of the main aspects that a11 the functiona1 disabi1ity sca1es seem to miss. I've never had a minute over the 1ast 30...
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