What DWME seem to be missing is that the UK Department of Hea1th themse1f is trying to use P1ain Eng1ish in their own communications (interna1 and...
Doctors who share “misleading” information on social media could face regulatory action, according to planned new guidelines. Posts made on...
All the more reason to ensure that this type of research is done on a large representative group of patients with the full range of severity and...
But that sounds like you did try stronger pain medication, but discontinued it because of side effects?
The point is they are excluding those who use stronger pain meds to control neurological pain and severe headaches. Maybe that is the group with...
Surely the selection of 'CFS' patients who can get by on only paracetamol to control their pain is going to mean the results are not going to be...
https://www.royalcornwall.nhs.uk/services/chronic-fatigue-syndrome-cfsme/ [IMG] The only thing these clinics seem to be taking from the new...
I note there is nothing in there about the patients having a 'Care Plan' devised, as recommended by NICE. Nothing helping with getting social care...
I think our charities need to be collating all this information from the 'specialised' NHS services being offered to PWME, so that if things do...
I've never had a vision in my head of PWME sitting around crossed legged in a circle before. Perfect conditions for spreading Covid in a...
I think CBT is described as a 'high intensity treatment' if it is being delivered by a therapist who has done the year's IAPT postgraduate...
I wonder if the more 'brain fogged' and severely exhausted a patient is when attending a medical consultation, the more they are likely to allow...
https://www.the-health-improvement-network.com/ Maybe patients with symptoms of fibromyalgia and CFS are more likely to have had intrusive...
The give away is when the clinics refer to patient recovery from ME/CFS, via using their 'therapies'.
I think the important part of this is that the guideline does not state that an individualised programme will (or should aim to) increase the...
It seems that PWME under these clinics should enquire as to the rational behind the offered 'therapies' and what the therapist anticipates the...
I know a number of FM sufferers who have had a CFS diagnosis added to their original FM diagnosis due to their 'chronic fatigue' and I presume...
I don't know, but my eldest is a teacher in a secondary school (ages 11-16) and a lot of the staff were getting Covid in the autumn despite having...
Yep. It's all based on stereotypes. Now I've read through the updated NICE adult autism guidelines I'm not overly impressed with them. There are...
I've just noticed the NICE autism guideline for adults was update in June 2021. I am just skimming them and they seem more detailed than...
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