Based on the 'deconditioning model' of 'CFS':...
My daughter was given Moderna for her booster and Pfizer for her original jabs.
It seems that there is confusion over what constitutes a 'fixed increment'. A personalised goal can still constitute a fixed increment if it has a...
An autistic friend pointed out to me that the Change.org petitions can have their wording amended by the person who started them, and for that...
It also links to the awful recommendations of the new NICE Chronic Pain guidelines, not the NICE guidelines on Neuropathic Pain and the guidelines...
Seems like they are trying to undermine the NICE 'pattern of symptoms' of ME/CFS that the new guidelines have established, specifically the need...
I saw this doctor once (I was under a female GP at the same practice in Devon from 1999 - 2005) on the recommendation of my next door neighbour,...
It states on page 10 [bolding mine]: So they have avoided saying it is deconditioning and fear of activity that 'perpetuates' CFS/ME [their...
Absolutely. When I was in hospital the nurse that showed an interest in understanding ME/CFS went straight to that site to learn more (on his...
This is the information I received from the Bedford clinic when I made some inquiries about their service in August this year (before the NICE...
Yes. I would definitely quote the relevant parts of the new NICE guideline in any form I do from now on as I wouldn't trust the HCP to have read...
The HCP doesn't directly ask to see a Care Plan, but rather they may make assumptions about the PWME if they haven't seen evidence of being under...
I'm sure you will be fine if your GP is supportive and provides good medical evidence for you anyway. But lots of PWME have struggled to get their...
That's why I would push for a formal Care and Support Plan and an annual review, because this then can be submitted as evidence.
Yes, but most PWME learnt they needed to avoid the specialist clinics under the old guidelines, and GPs ignored the other parts of the guideline....
It was really not possible to push the 'good parts' of the old guideline in terms of getting better care, as there was so much bad in them....
The new guidelines have separated out the 'Care and support plan' from the 'Management plan'. So you should still have the former even if you...
Under the new NICE guidelines the Care Plan is supposed to be drawn up by a specialist ME/CFS clinic, not the GP. Then the GP is able to do the...
Maybe you should specifically ask what services the CCG commissions (rather than 'provides')? Everything has got so woolly with the use of council...
I think it would be wise to stipulate on any claim form that you are already using energy management techniques to the best of your ability...
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