[IMG]
I've started looking at some of the booklets/advice pages from different ME/CFS services on energy management/pacing, and the one thing they all...
The probably used 'exercise' as their search term (graded exercise therapy)...
Imagine if they only monitored and reviewed Parkinsons and MS patients for 6-12 months maximum from the initial GP referral for the investigation...
They (Newcastle Foundation Trust) state this: So no need for the Yellow Card system for patients to report harm, even for pharmacological...
I found the Newcastle comment regarding no harm from GET: Edit: They also state that they do not use 'PACE' style GET (in another of their...
Actually, it is the Newcastle Foundation Trust providing the comments, not a particular service. They seem to have given the submission on behalf...
From memory, I think the Newcastle service [Edit: it was the NHS Newcastle Foundation Trust, not a specific clinic] said they had never seen a...
I think this will be an important point to bear in mind when evaluating any new management advice from the specialist clinics. From what I have...
I never got past the ABN comments with my detailed reading of comments vs NICE responses, but have moved on to a quick skim read of the comments...
Brilliant, thank you!
It only starts to make sense when you see the expansion of 'Functional Neurological Disorder' clinics is happening across England and presumably...
The reason NICE gave for not recording it was to allow all the attendees to 'speak freely'. So the four RC attendees who signed the letter in the...
Association of British Neurologists : NICE: ABN: NICE [bolding mine]: I'm not that far through the stakeholder comment tables, but it...
I have given up counting the number of times NICE's response to stakeholder comments is along the lines of, 'That is factually incorrect'...
Now that sounds like something a certain soon to be President of them might have said...
And one who is willing to learn from listening to patients!
Wot the patients said to do this time :whistle: We must have been psychic or something...
I suspect that the Association of British Neurologist's comments were written by Jon Stone, or one of his minions/ilk:...
That's because they're the newly diagnosed, therefore the most naïve and 'trusting of the system' patients. Give them a year or two and they'll...
Separate names with a comma.
