Apparently, the study has been 'paused'... https://spectrum10k.org/statement-10th-september/
I agree, I am trying to see things from the BPS viewpoint - there is lots of fish in the sea from their perspective. I'm not saying it is right to...
I have to conclude it's because it was ME they were first interested in, beginning with their reframing it as 'chronic fatigue syndrome' and...
I've just been copying relevant links from the Autscape chat list. This is the latest one from the NAS:...
Statement from Autistica: https://www.autistica.org.uk/news/biological-research
https://www.verywellhealth.com/why-autistic-people-are-against-spectrum-10k-5199849
In their press statement Forward ME expressed their concern that the 'finalised' draft guideline allowed CBT to be offered to 'help manage...
Might be more reasonable if only both NICE and Cochrane had a proper understanding of what constitutes a conflict of interest and subsequently...
An example of NICE's response to the below stakeholder concern to GET in the 2007 draft. Example stakeholder comment (BRAME Blue Ribbon for the...
But the 2007 NICE CFS/ME guideline specifies: So surely this means that the guidelines even back in 2007 recognised that there were potential...
Given that most GPs have no idea how to accurately diagnose ME/CFS, I think this has happened increasingly over the years. That's why PEM/PESE...
Thank you again for you hard work over the years on this.
I was thinking in terms of their doctors purposely recording them with a different code than G93.3 because of their 'chronic fatigue' symptoms,...
I wonder how many patients who have been told they have 'Chronic Fatigue Syndrome' by a doctor (in the UK) have actually been given the F48.0 code...
I am sure this is going to be brought to the NICE roundtable meeting by certain Royal Colleges as 'evidence' to support their case.
Let's not forget what happens when people do a Google search. I put in 'NHS chronic fatigue', the very first link in Google brings up this:...
This is an interesting find. Because this is why they are arguing against PEM/PESE being the core symptom in the new NICE guidelines. They want...
I think that is what they call 'harassment'.:rofl:
I actually felt that was how the NIHR HTA panel I was on worked. However, that was very different than the other panels that had a high percentage...
Well, they stared down the barrel of the gun of repeated Freedom of Information requests, PWME attending their talks and having their work...
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