I don't know if this relevant to your study and aim but a forum member (@chillier) recently did some interesting home experiments using eye...
Great
Great blog Simon, thanks. Sounds like a useful and worthwhile study. The original Norwegian study was published back in 2016. I wonder why the...
There was a Q&A afterwards where he also spoke about the PACE trial and ME/CFS a couple of times. Perhaps someone else can make a transcript of that.
For what it is worth: here's a transcript of the part of his talk that is about ME/CFS and Long Covid: Starting at minute 31.22 in the video: …...
He mentions Spock's idea that babies should lie on their belly, the view that doctors should watch patients take their TBC medication (to ensure...
Yes strange that IVIG had the lowest decrease in mean score but the highest percentage of improvers. The following figure is from their...
Sounds interesting. Let's hope it is relevant to ME/CFS and post-infectious illnesses.
"to answer the question, consistently completing the tasks is not a requirement for a valid effort test administration" But the problem is that...
There have been several local news articles where chronic pain patients report improvement with a neurostimulation device that unfortunately costs...
They found a prevalence of 3.1% for CFS (Fukuda-criteria) which is abnormally high. I think this could be the reason: "the FSS diagnosis was...
They needed 50 out of 832 available metabolites for a model to separate patients and controls. To me that suggest they had a really hard time...
The webinar itself is available here: https://www.zonmw.nl/nl/nieuws/terugblik-webinar-over-onderzoek-naar-mecvs
During the Webinar Rosmalen also answered to the question how Lifelines determines if someone has ME/CFS or not. This is a quickly translated...
Here's an English translation of what she said in Dutch during the webinar. Martje Bos: "We conducted research in Lifelines. That's a population...
From what I understood, the lifelines estimate was based on how prevalent ME/CFS was among relatives of ME/CFS patients.
Apologies, the last one should have been 'without ME/CFS'.
The researcher mentioned above was Martje Bos, who is a ME/CFS patient herself and is studying ME/CFS in relation to other functional syndromes...
Post copied and subsequent posts moved from Genetic Risk Factors of ME/CFS: A Critical Review. Joshua J Dibble, Simon J McGrath, Chris P Ponting....
During the ZonMw conference on the Dutch ME/CFS research program yesterday, one researcher said that they estimated the heritability of ME/CFS in...
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