Agree @mango, CSS theory for ME is not harmless as evidenced with claiming CBT can challenge negative thoughts that in some weird and magical way...
Also aren’t there possible other causes for sensitivity to light, sound etc than central sensitisation? Do people with brain damage or...
Also muscle and nerve pain can be part of the ME symptom picture and may not be co mobrbid fibromyalgia
Absolutely, fully agree. Tim Noakes theory I referred to discussed in Marchant’s book about CFS shows he has a a very poor understanding of how ME...
And the final two pages on Noakes theory of CFS from Marchant’s book.
@Michiel Tack, in case it is of interest I will attach screenshots of the pages in the Jo Marchant book discussing Tim Noakes theory on CFS. It...
@Michiel Tack, fully agree. There is no way they should be pushing this theory and desentisation treatment in the form of graded exercise/activity...
To add, UK author, Jo Marchant, in her book called Cure - A Journey into the Science of Mind over Body - published in 2016 discussed how a well...
Thank you @Michiel Tack for writing this excellent explanation of the dangers of the central sensitisation theory for ME. It beggars belief that...
Ok, thanks @JaimeS
@adambeyoncelowe, reading the study again, I agree with your interpretation.
Yes, i agree it was a nonsense study, but that is the point is it not that the IOM SEID can be open to being applied very badly. Edit: I note...
Sorry I did not make clear in my post I was referring to Medfeb sharing the HHS are using any criteria for research. A bit harsh to indirectly...
Ok, I have slowly read through this thread after putting the petition up. I have learnt some disagree with Jason’s definition of PEM when doing...
That is extremely concerning.
Very true, but there were still a group of doctors supporting ME was a biomedical illness and they even held a symposium in 1978 at the Royal...
Thank you @DxRevision watch for your further helpful reply. Although I long for a universally accepted ME diagnostic criteria, i hope my comments...
Thank you @DxRevision watch for your detailed response. I appreciate as there is not yet universal acceptance of a single criteria set that...
Although I appreciate it is good news that ME is back under neurological and not shunted under a mental disorder, I still don’t think it’s helpful...
The ICC was created by consensus from a panel of clinicians and researchers who have had years of experience working with people with ME.
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