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Page 12 of 15
  1. anniekim
    Post

    Petition to ask government agencies adopt ICC

    Re pem, this same person made this comment: “Jason used this as a definition of PEM in his SEID research. "To meet the post-exertional malaise...
    Post by: anniekim, Jul 26, 2018 in forum: Petitions
  2. anniekim
    Post

    Petition to ask government agencies adopt ICC

    The main concern for me is people like Jason have done studies using data to show that SEID can diagnose even more people than under Fukuda which...
    Post by: anniekim, Jul 26, 2018 in forum: Petitions
  3. anniekim
    Post

    Petition to ask government agencies adopt ICC

    I believe there is atypical ME inclusion in the ICC which could pick up milder patients.
    Post by: anniekim, Jul 26, 2018 in forum: Petitions
  4. anniekim
    Post

    Petition to ask government agencies adopt ICC

    I read it in the light of US policy does seem to influence what happens in other countries and would include UK. In the current review of the NICE...
    Post by: anniekim, Jul 26, 2018 in forum: Petitions
  5. anniekim
    Thread

    Petition to ask government agencies adopt ICC

    I have signed....
    Thread by: anniekim, Jul 26, 2018, 124 replies, in forum: Petitions
  6. anniekim
    Post

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    Thank you and no problem @Mithriel
    Post by: anniekim, Jul 2, 2018 in forum: General ME/CFS news
  7. anniekim
    Post

    Member comments wanted: First section (Why the guideline is needed) of the NICE ME/CFS guidelines draft scope

    I too do not agree that ME is characterised by fatigue. It is characterised by extreme low stamina wirh global increase in symptoms if a person...
    Post by: anniekim, Jul 1, 2018 in forum: General ME/CFS news
  8. anniekim
    Post

    UK 21 June 2018 | 3-hour ME debate in Westminster Hall, secured by Carol Monaghan

    Will there be a transcript of the debate? Thank you.
    Post by: anniekim, Jun 21, 2018 in forum: General ME/CFS news
  9. anniekim
    Post

    Merryn Crofts - media and inquest

    @Dx Revision Watch, Merryn’s family kindly explained to me today that they are aware of this case and have established that although it is...
    Post by: anniekim, May 21, 2018 in forum: General ME/CFS news
  10. anniekim
    Post

    Merryn Crofts - media and inquest

    Thanks, I am glad they have put it in the print edition as well. It’s interesting to note that there were no comments under the online article. I...
    Post by: anniekim, May 21, 2018 in forum: General ME/CFS news
  11. anniekim
    Post

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Have signed. Curious what drugs ME Action have in mind?
    Post by: anniekim, May 12, 2018 in forum: Advocacy Action Alerts
  12. anniekim
    Post

    Central sensitisation theory - discussion thread

    @mango, who are the people who wrote this request? Thank you.
    Post by: anniekim, May 3, 2018 in forum: Psychosomatic theories and treatments discussions
  13. anniekim
    Post

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    Thank you everyone, v helpful, as and as awful as I expected.
    Post by: anniekim, May 2, 2018 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. anniekim
    Thread

    Anyone know the studies claiming to show if ME patients believe won’t get better they will not?

    I was reading the chapter again in the book Cure by UK author Jo Marchant (published in 2016) on fatigue and CFS. She refers to there being robust...
    Thread by: anniekim, Apr 30, 2018, 14 replies, in forum: Psychosomatic news - ME/CFS and Long Covid
  15. anniekim
    Post

    Central sensitisation theory - discussion thread

    @dave30th, you said above if anybody has heard of White referring to the CSS model publicly you would be interested. In the book, Cure, by Jo...
    Post by: anniekim, Apr 30, 2018 in forum: Psychosomatic theories and treatments discussions
  16. anniekim
    Post

    The ME Show

    I second all of this. The politics of ME is key.
    Post by: anniekim, Apr 23, 2018 in forum: General ME/CFS news
  17. anniekim
    Post

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    Agree what a waste of funds...
    Post by: anniekim, Apr 23, 2018 in forum: Psychosomatic research - ME/CFS and Long Covid
  18. anniekim
    Post

    Tinnitus poll: Do you experience it?

    Constant since ME became severe 13 years ago combined with constant sensation of blocked ears that began first year of ME 20 years ago. Saw ENT...
    Post by: anniekim, Apr 19, 2018 in forum: General and other signs and symptoms
  19. anniekim
    Post

    Central sensitisation theory - discussion thread

    Thanks @dave30th for that clarification. I wrongly thought when the author said, ‘He (PW) doesn’t call it a central governor, but he too believes...
    Post by: anniekim, Apr 17, 2018 in forum: Psychosomatic theories and treatments discussions
  20. anniekim
    Post

    Central sensitisation theory - discussion thread

    @Cinders66, thanks for link to Times article, v useful in showing me people like White were using the troubling CSS theory in their work too. I...
    Post by: anniekim, Apr 16, 2018 in forum: Psychosomatic theories and treatments discussions
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