Ah, I see, I am looking on my tablet.
@Docsimsim, I have looked on Afme under my mum’s account who is not banned (they banned me too for some very innocuous comment I made a couple of...
@Sasha, I wasn’t thinking of the comment you shared again. I hadn’t noticed it until you shared it again. It was the comment on the first page,...
Fair point that S4ME has no official status and is a talking shop by and large, although they submit reports to such things as the NIH Common Data...
@Trish. I know you have asked Slyslaint and I am sure they will answer, but my answer would be on the lines of what Slysaint has already...
Aside from having Afme as a member here, I truly do not believe Afme since the 1990’s when they decided to hitch their wagon to the bps lot have...
Thanks @Melanie. Really need to stop typing today but will try and come back to this replying properly.
Thanks Jo, all clear now. Sympathies about cognitive problems, am the same hence many questions!
Thanks @Jo Best for the clarification, understand now :) One more thing, you write: ‘I don't believe for a second that ME is a functional...
@Jo Best, can you clarify this please, as am a bit confused about what you are trying to say here. If someone like Harrison from the outset is...
Last night after Jonathan Edwards kindly replied to my question on the Harrison/PEM study, I felt initially a little reassured, but standing back...
Thank you @Jonathan Edwards
Thank you @Jonathan Edwards, that is a really helpful and encouraging reply about Neil Harrison. When you say you read an abstract of Mark...
@Jonathan Edwards, may I ask you about the Mark J Edwards/Harrison neuroimaging PEM study? As Dr Neil Harrison has now joined the CMRC board,...
Sorry for going off topic here but @Melanie can I ask you a question about the criteria issue with the NIH study as I am still confused about it....
Totally agree.
Glad EC is stepping down, but presume Fitnet still ongoing and of course she heads CFS Bath clinic. Like Chris Ponting who seems to grasp ME...
I am severely affected - bedridden 24/7, can mobilise on to my chemical toilet at the end of my bed but no further. However, I am not as severely...
@Paul Watton, do you mean separated into two patient groups, one with fatigue focused PEM and one with severe PESF, or that both types of PEM can...
Done.
Separate names with a comma.
