Thank you. It was a RCP staff member who told me that and it was at the 1st Stakeholder meeting. Maybe they changed their mind? or are there...
You aren't a pain at all. I'm probably not explaining it well. The current Guideline will not stand. There will be an updated Guideline. NICE...
It's up to the patients on the committee and any sympathetic doctors there to introduce and call their own experts with the evidence they want to...
a NICE have already decided to update the old Guideline. Happened in 2017 (it should be noted here that this was only after pressure) So there...
The RCP manual says that someone can be asked to refrain from evaluating a particular section if there is a COI or if they have fixed known...
I would certainly consider it likely that there has a lashing of purely bureaucratic incompetence in it. When I was at the stakeholder meeting I...
They will be using the Delphi method of decision making (unless the GDG leader or someone has changed this since I asked)...
That's from the RCP "team". I posted a year or so ago a job description of one of their team which would be the type of person who searches for...
The Royal College of Physicians is developing the ME/CFS guideline. "Guideline development group recruitment An independent guideline development...
That's what they do. Flash back to the days of "graded exercise" and patient being told to increase their symptoms regardless of the damage and...
I'm not arguing for patient members to resign (not yet anyway) but wonder how they can possibly keep NICE on the hook? Especially when they will...
Anyone know who this is? "But Owen Hughes, who chairs a group to improve ME services, said progress had been made, despite issues. 'Progress has...
I have a vague memory that at the time AFME had a trustee who was a statistician or access and comments from one Also they have medical advisors...
It comes down to numbers in the end. If the PACE/Psych crowd or their sympathisers or people easily influenced into that area vote together (and...
I don't know where you live Dokagirl but the question of justice and redress has been looked at in the UK for a long time. Lawyers have been...
I don't like the sound of this bit "The questionnaire will ask you questions about your fatigue symptoms, mood and thought processes" so it's...
The proceedings became "private" after a while and I couldn't see any sign of Carol in them
The Guardian is probably working out how to get a bigger feature out of this as we speak....
Dr Norma O'Flynn certainly gave the impression at the Stakeholder meeting that the lay members would be selected by "them" (the RCP National...
one of the Trustees has links to Allen and Overy.
Separate names with a comma.
