(you probably know all of this and I'm just including it for anyone who hasn't read the old PACE minutes) A look at the PACE Trial steering...
Thank you @chrisb I had forgotten he featured there. The correspondence is interesting as it sheds light on what the statisticians/designers...
I'd like to know which of the ME charities PACE trial author A L Johnson (Tony Johnson) had a "familial involvement" with (my bolds and...
wow Mike - all this is wonderful. I love following your marathon! effort around Europe
Wasn't there a similar job listing (for maybe the Liverpool) service which attracted a lot of complaints a year or so ago?
Thanks for letting us know. I do have MTHFR mutations but when Rich VKB was alive I worked with him and feel I did as much as possible to address...
We asked around at our early ME groups but no one drank diet cola A few did drink a lot of ordinary cola and said that they fainted less. This...
Been going for a year or two I think? Should hopefully have a few by now
Lucibee, There is an Australian maybe Physiotherapist ? who comes comes out of the woodwork every now and then and claims to have an early model...
Is this a finding that is also seen in clinical depression? (other wise I'm not sure why anyone would even think of that)
What do you have in mind? I genuinely can't see any real advantage to uniting with other badly treated patients. We've had a lot of this bad and...
Does anyone know how people were recruited for this? It turned out to be a scam and people were used. I'm wondering if we need to adopt an...
Moderator note - this post has been copied across from this thread. Yes, I met Dr Simpson when he visited a London ME support group in the 90's....
Yes, I met Dr Simpson when he visited a London ME support group in the 90's. His work was on the shape of the red blood cell.He visited a number...
Binkie, I think Yvette Cooper MP said she has Hughes Syndrome a few years ago and I can't remember if that a different diagnosis or if she thought...
The reference given for that quote was Appendix B of the recent NICE surveillance report "Of the approximately 300 pieces of evidence highlighted...
I can sleep through the night but I don't feel any better for it. It might be an individual thing. It's how I feel when I wake up that is the...
The people who took part in this seem to have been "used" to demonstrate someones flaky ideas
I remember David Baddiel (UK "comedian") saying something like this in the press along the lines of "why don't people with CFS just shut up and...
He could be referring to attempts to change this since 1969 maybe? "Issues have arisen with the classification of the term “CFS” in the U.K as...
Separate names with a comma.
