Did Carol Monaghan ask for a briefing paper and if so, who did she ask and was she reading from the briefing paper in her speech yesterday Is...
I wonder if this is where she is speaking? (and if so I can't see where it is televised as only the main chamber seems to be on TV and the online...
Maybe it was through ForwardME or the APPG? There has been talk around a card similar to the one to report drug side effects to be used for GET...
It's a real pity that we couldn't have had a better summing up at the end to see if they included the salient points. Wasn't enough time to do...
I wish there was some way to talk about how vaccines could possibly trigger health problems without there being an "antivax" undercurrent. I've...
Their transport costs would have been covered. I gather that they are a "two man band" type husband and wife team. Maybe networking or to spread...
I was at the table last time (in January) with the "thought field therapy foundation" representative. Apart from her original introduction I don't...
Has a look on the IiME conference (public) and Colloquium (private) and can only see her involved in the private one.
I think that the expectation that stakeholders at the meeting could adequately cover all the content NICE threw at us was unreasonable. It might...
I wasn't trying to argue for or against the LP being in the draft Scope. Point I was trying to make (albiet badly!) was that our last meeting was...
Thank you. As far as I am aware this is the joint submission from the 25% group and Stonebird http://stonebird.co.uk/SCOPE/cover.html Agree that...
Patient surveys on exercise and harms Reports on outbreaks i.e. Giardia in Norway The Dubbo report showing severity of initial illness This feeds...
We don't to prove firm evidence but only that there are abnormalities and what they are. We can explain how mixing groups for research is maybe...
What were her comments on the Scope please?
I don't understand how a discussion on ME vs CFS could be considered diverting given that we were there to discuss the Scope and the Scope started...
But did AFME raise Aetiology at the meeting? Did anyone hear them raise any of these points
There is a rider on top of a very badly trained and viscous horse. It's kicked and bitten before. It remains to be seen how long the rider is in...
Was that a patient, carer or another type of participant? (and not asking for names)
It depends on how much strength / time you have and how you feel after. Usually I feel better about speaking out. We can sometimes meet good...
wow - 10am to 12 noon.
Separate names with a comma.
