Neurological diseases are on the list of inclusions although it doesn't specifically say ME I don't think it is intended to be a complete list
I think this is the same drug used in POTS tests? During the Tilt Table test NTG is sometimes administered. Not sure how frequent this is as I...
Not sure if it is the same as the UK. There were reports of people on a particular state benefit here who were not able to increase their hours...
I think this is one of their ruses for buying the trust of patients. It seems outwardly to be a step forward and desperate people think that...
I think I may have LC on top of ME and on top of the adverse reaction I had to the vaccine. My extra symptoms are 1. Loss and change of smell and...
The idea may have come from the Dubbo study by Andrew Lloyd. "Severe acute infective illnesses predicted prolonged illness, prolonged mood...
My GP surgery has lots of space now for things like this as they all work from home - one apart from a Locum GP who is there each day for...
It can depend on what complications there are from the hip breakage as well. Is there on-gong pain from the hip or anywhere else on your body from...
I think in NZ giving LC people access to money and free competent doctors would make a huge difference. It's a shock to people on the LC group I...
It was. I remember discussion on using nicotine patches but can't remember where I saw it
Does this sound similar? I am cooking a meal which I am looking forward to and have done before. I enjoy cooking. Have the ingredients and...
Can you give us a specific example of when and how it occurs please @strategist (just so I can understand you properly). If too tired or...
Hi Sally, I had a hip fracture during a road traffic accident years ago. It wasn't considered a serious one at the time. There were other...
I have a feeling that the UK ME association did a survey of their members online but I can't find it now.
Parkinsons? (I have a couple of aunties who had investigations for years and only a working theory of this until they died)
I think that it is misleading to describe patient surveys as studies. We do need proper studies though I think. Patient surveys were argued as...
Something I found useful when living in Australia was to see doctors for specific symptoms. As an example I had BP/HR problems for years and...
Celebrex really helped when I was injured in a road traffic accident. Felt like I was living in a pain amplifier for years after that until Celebrex.
Fantastic. Where do I sign up. I was never able to cycle before I got ME and now I will be able to do it on week 4! Dancing as well as swimming....
Covid felt very much like a virus I had in my teens a few years before I got the virus that started ME. I have the same sore lungs from Covid...
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