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  1. mango
    Post

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    Good suggestion, but maybe better to ask about orthostatic intolerance or dysautonomia so you don't leave out all of us with orthostatic...
    Post by: mango, Oct 31, 2024 in forum: Hypersensitivity and Intolerance Reactions
  2. mango
    Post

    Alcohol Intolerance poll. Please do the poll even if your answer is no.

    I checked Worsened 'hangover' effect the next day + Upset stomach - soon after + Aggravation of ME/CFS symptoms soon after + Other unpleasant...
    Post by: mango, Oct 30, 2024 in forum: Hypersensitivity and Intolerance Reactions
  3. mango
    Post

    Is your light and sound sensitivity one sided?

    Yes, my sound sensitivity is much worse on the left side than the right. I experience much worse paresthesia on my left side in general. I often...
    Post by: mango, Oct 30, 2024 in forum: Neurological/cognitive/vision
  4. mango
    Post

    News From Jarred Younger / Neuroinflammation, Pain, and Fatigue Laboratory at UAB, From Aug 2020

    "C-Reactive Protein (CRP) is a sensitive marker of inflammation. I am presenting some new data on CRP elevations I see in chronic pain and fatigue...
    Post by: mango, Oct 29, 2024 in forum: ME/CFS research news
  5. mango
    Post

    News from Scandinavia

    Paywalled news article in a local paper: Richard Gavettes låtar släpps efter hans död...
    Post by: mango, Oct 28, 2024 in forum: Regional news
  6. mango
    Post

    Psychotherapy including CBT and other counselling - benefits and harms

    Is the ban really going ahead in the UK, or has it been stalled? Also note that the planned ban on conversion therapy does not include all sexual...
    Post by: mango, Oct 26, 2024 in forum: Other treatments
  7. mango
    Post

    Should We Have a Better Term than Brainfog?

    "Mental trötthet" = "mental fatigue" is a common medical/scientific word for it in Swedish, in the context of traumatic brain injuries, stroke...
    Post by: mango, Oct 26, 2024 in forum: Neurological/cognitive/vision
  8. mango
    Post

    Should We Have a Better Term than Brainfog?

    Same here. It's like standing in the middle of a massive library, in the dark. You know the information is there, you might even know in which...
    Post by: mango, Oct 26, 2024 in forum: Neurological/cognitive/vision
  9. mango
    Post

    Opinion Chronic fatigue syndromes: real illnesses that people can recover from, 2023, The Oslo Chronic Fatigue Consortium

    An article by Jörgen Malmquist in SFAM's journal AllmänMedicin, issue 3-2024. ("SFAM, the Swedish Association of General Practice, is the...
    Post by: mango, Oct 25, 2024 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. mango
    Post

    News from Scandinavia

    Part 6 about Maja. Mötet om Maja blev en chock: ”De säger att jag gör Maja sjuk”...
    Post by: mango, Oct 22, 2024 in forum: Regional news
  11. mango
    Post

    News from Scandinavia

    Part 5 about Maja. Avestahälsan om kritiken: ”Postcovid är inte beprövat och godkänt”...
    Post by: mango, Oct 21, 2024 in forum: Regional news
  12. mango
    Post

    News from Scandinavia

    This article was apparently the first in a whole series of articles about Maja. Still paywalled, unfortunately. 3 articles have been published so...
    Post by: mango, Oct 20, 2024 in forum: Regional news
  13. mango
    Post

    Gay conversion therapy

    RFSL has published a new article about conversion attempts on their website. It is available in both English and Swedish. What are conversion...
    Post by: mango, Oct 20, 2024 in forum: Other health news and research
  14. mango
    Post

    News from Scandinavia

    Paywalled article in a local newspaper: Maja, 20, lever sitt liv i en säng – blev aldrig frisk efter covid...
    Post by: mango, Oct 19, 2024 in forum: Regional news
  15. mango
    Post

    Stuart Murdoch (of Belle and Sebastian)

    A GoodReads review of Nobody's Empire from a reader called Morgan: https://www.goodreads.com/review/show/6928958957
    Post by: mango, Oct 19, 2024 in forum: General ME/CFS news
  16. mango
    Post

    ME researcher Jonas Bergquist - interviews, talks

    [MEDIA]
    Post by: mango, Oct 18, 2024 in forum: ME/CFS research news
  17. mango
    Post

    News from Scandinavia

    Recorded talks and a panel discussion from this conference are now available on RME's YouTube channel (in English). Jonas Bergquist, David...
    Post by: mango, Oct 18, 2024 in forum: Regional news
  18. mango
    Post

    A pilot self-advocacy program by Awareness for POTSies

    Again, the program is not about treatments. Can you all please at least look at the material in question before you criticize it? I'm leaving...
    Post by: mango, Oct 17, 2024 in forum: General Advocacy Discussions
  19. mango
    Post

    A pilot self-advocacy program by Awareness for POTSies

    This program is not about treatments.
    Post by: mango, Oct 17, 2024 in forum: General Advocacy Discussions
  20. mango
    Post

    A pilot self-advocacy program by Awareness for POTSies

    I 100% agree, I feel exactly the same about this kind of cutesifying. In Sweden some people call pwME "emmisar" and I find it extremely cringey.
    Post by: mango, Oct 17, 2024 in forum: General Advocacy Discussions
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