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  1. Daisymay
    Post

    Open Letter to the Chief Executive of Action for ME about the AfME web page on Graded Exercise Therapy

    Really excellent Trish, thanks very much for doing this, now rest and pace!
    Post by: Daisymay, Oct 21, 2019 in forum: Open Letters and Replies
  2. Daisymay
    Thread

    Public Damning Report on BMA

    https://www.theguardian.com/society/2019/oct/17/bma-apologises-to-female-doctors-over-sexism BMA apologises to female doctors over sexism...
    Thread by: Daisymay, Oct 20, 2019, 0 replies, in forum: Other health news and research
  3. Daisymay
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome', Larun et al. - New version October 2019 and new date December 2024

    That video is SO good, Graham explains things so clearly.
    Post by: Daisymay, Oct 15, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  4. Daisymay
    Post

    Researcher Interactions Question collection thread for S4ME Q&A with Dr Michael VanElzakker

    Thanks Andy and thanks to Dr. VanElzakker. 1. How does he choose his cohorts and which criteria does he use, and does he see any...
    Post by: Daisymay, Sep 28, 2019 in forum: ME/CFS research news
  5. Daisymay
    Post

    NICE Guideline review: Call for evidence on myalgic encephalomyelitis (or encephalopathy)/chronic fatigue syndrome, deadline 16th Oct 2019

    Well surely all BPS research results are opinion based, with patients giving their opinion as to whether they think CBT/GET have helped or not....
    Post by: Daisymay, Aug 30, 2019 in forum: 2020 UK NICE ME/CFS Guideline
  6. Daisymay
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Agreed and it is surely also difficult for them to prove it didn't cause deterioration, especially when patient surveys show such high levels of...
    Post by: Daisymay, Aug 4, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  7. Daisymay
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Yes the 2015 law on consent does indeed apply to all medical personnel: " Doctors, and other healthcare professionals, are now under a clear duty...
    Post by: Daisymay, Jul 28, 2019 in forum: General ME/CFS news
  8. Daisymay
    Post

    Protocol: Persistent physical symptoms reduction intervention: a system change and evaluation (PRINCE), 2015 onwards, Chalder, Moss-Morris, et al

    Call me cynical, but I strongly suspect you don't need to go to the conference to hear the results, they'll have been a foregone conclusion from...
    Post by: Daisymay, Jul 18, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Daisymay
    Post

    REC advice on PACE trial data changed in favour of release

    Excellent result, thanks so very much indeed for you dogged work on all of this, stellar! And of course always remembering Alem's part in all of...
    Post by: Daisymay, Jul 11, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  10. Daisymay
    Post

    Crashed. Could hayfever have done this?

    Sorry Squeezy I forgot to say, with the MSM, though I find it helps with hayfever, you need to increase the level slowly as you can feel a bit...
    Post by: Daisymay, Jul 7, 2019 in forum: Post-Exertional malaise and fatigue
  11. Daisymay
    Post

    Crashed. Could hayfever have done this?

    Yes definitely possible, I'm pulled down every year with it, it can really clobber you on top of ME. For me, I've found using something like...
    Post by: Daisymay, Jul 7, 2019 in forum: Post-Exertional malaise and fatigue
  12. Daisymay
    Post

    WebMD updates "The Scoop on Chronic Fatigue Syndrome"

    It's not trivial, you're right it is important, thanks very much for all your work x
    Post by: Daisymay, Jul 3, 2019 in forum: General Advocacy Discussions
  13. Daisymay
    Post

    CDC Treatment Evidence Review - consultation period

    Thanks very much Mary for all your work on this x
    Post by: Daisymay, Jul 2, 2019 in forum: 2021 USA CDC ME/CFS Diagnosis and Treatment Review
  14. Daisymay
    Post

    Physios for ME

    Welcome and thank you Physios for ME. I've sent you private message.
    Post by: Daisymay, Jul 2, 2019 in forum: General ME/CFS news
  15. Daisymay
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    This!
    Post by: Daisymay, Jul 2, 2019 in forum: General ME/CFS news
  16. Daisymay
    Thread

    New Therapy Targets Gut Bacteria to Prevent and Reverse Food Allergies

    https://www.brighamandwomens.org/about-bwh/newsroom/press-releases-detail?id=3352 New Therapy Targets Gut Bacteria to Prevent and Reverse Food...
    Thread by: Daisymay, Jun 30, 2019, 3 replies, in forum: Other health news and research
  17. Daisymay
    Post

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    And if patients did report harm woud they be believed or would it be dismissed/downplayed as part of their wrong illness beliefs?
    Post by: Daisymay, Jun 29, 2019 in forum: General ME/CFS news
  18. Daisymay
    Post

    A general thread on the PACE trial!

    Thanks for posting and of course for giving the talk. Were the audience shocked at what they heard re the standard of the "science" ? And the...
    Post by: Daisymay, Jun 2, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  19. Daisymay
    Post

    More PACE trial data released

    Very good point!
    Post by: Daisymay, May 17, 2019 in forum: Psychosomatic research - ME/CFS and Long Covid
  20. Daisymay
    Post

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    So their profession takes precedence over patient care and safety, and scientific accuracy, that says it all really and from what we know from all...
    Post by: Daisymay, May 8, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
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