I take your point about the use of the word response but that's why I said treatment-response bias - not just response bias as per the...
In addition we have another bias - perhaps motivation might be a better word. Patients often need to keep these clinics and therapists onside....
Treatment - response cognitive bias. If you respond to the treatment then it is inevitable that cognitive bias is a part of that response.
This is just awful. We see so much around this topic as a community that relies heavily on the internet, we're even accused of it en masse as...
Edit - from MSEsperanza's post above So the old guidelines that left the majority of patients exposed to risk of harm weren't controversial...
I think this is precisely what they will try to do. I also expect to see more gaslighting of the ME community. Poor quality papers & articles...
Decades. An ME patient I met was sectioned for comorbid mental health problems, though of course as far as the psychs were concerned it was all...
Quote from @Wyva's post - 1st post in thread Well, no...no one emphasises PEM as a disease, except maybe PG. It is an exacerbation of existing...
Please forgive my ignorance but what does BOPIC stand for - as in "BIPOC children" in the 3rd tweet.
Indeed and the other aspect of using sedentary controls are these people are sedentary by choice. That may also have an impact on how they think...
This was one of the arguments put forward to get patients to support PACE. It would "prove" once and for all.... :rolleyes: If they're genuinely...
What about the CFS clinics themselves? Whether they follow BPS ideology or not surely they can't deny that such a project might be useful - even...
My old GP practice used to send out quarterly newsletters - they were keen on patient participation. Practices that do that might include a link...
before the pandemic I woukd have stuck my head above the parapet and asked about a poster to put up in my GP surgery. It's harder to get in...
More like the BPS crew don't like ME patients asking awkward questions and asking for enough information so they can give informed consent to...
Maybe it's just something completely different but I get what I call the shakes quite badly if I'm not careful. It can affect all limbs -...
I'm not now, maybe shame is a bit strong but I was definitely a bit embarrassed by it when I first became ill and it dawned that people now looked...
When you reached 80-90% improvement - was it that you felt that much better or could do that much more (less the burden of commuting & working)...
IBS is another condition that has the same issues.when it comes to how patients view and report symptoms.
And there it is in a nutshell. Pacing, however well you manage it isn't a cure. It simply stops you feeling worse. It may, if the stars align...
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