I also wanted to point out the existence of this page:...
Echoing Adam @Cinders66 I'm pretty sure the IOM was designed to be used by primary care physicians in the US (i.e., GPs) currently in practice who...
MEpedia is an open wiki. This is an invitation for anyone to contribute whatever content they like. That said, I imagine much of this page is /...
I figured you would be! I don't think you need research to show that people with ME may have co-morbidities of POTS, MCAD or EDS. This is a...
Hi all! I'm working to improve the quality of information for patients with ME, fibro, EDS, POTS, mast cell activation disorder having surgery as...
Sorry if I'm missing some things – had to take a break due to health. This is a good possible explanation. Some labs are total crap. See for...
When you say “out there” I hear “woo” or questionable training/methods, which is not what I associate with top institutions (which is not to say...
@arewenearlythereyet Can I ask you to at least acknowledge that this is not "bonkers out there stuff." This is the research of serious people...
These are not mystery viruses... Agree re: investing in epidemiology. That is another area of this field totally lacking. We can advocate all we...
:heart: I think we're on the same page but it sounds like you're both recommending that I consult with a neurologist but also saying that the...
I think what's hard is that there are many people who have high antibody titers, treat the purported infection, feel better, have drop in titers....
There's not much robust evidence of anything. That's why we need to go do the work.
So, I have had several infectious disease doctors/researchers tell me the above is actually not true, even though that is the received wisdom. I...
LOL @Hip I'm realizing this exact conversation has been had many times before, on Phoenix Rising. Let's try and go do something about this, to...
Quick question @Jonathan Edwards, would you not consider titers of 1:640 (the test's maximum) to Coxsackie B4 a strong sign of an active...
Was just doing some reading and came across the below in Cancer as a Metabolic Disease. I thought this was apt and a good framing for ME!...
I'm not sure this is proof re: role of herpesviruses in ME specifically. Several intracellular pathogens induce mitochondrial change. e.g., HSV1...
Atypical polio was a misnomer as epidemic ME was not ultimately an atypical presentation of polio. It's the title of a piece of writing, not the...
Now there's a name that would work!
This puzzles me. We have ample reason to think these outbreaks could have been caused by enteroviruses, namely the first-hand accounts of the...
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