As someone whose BDI used to be lower and who is vastly better at a “moderate” BDI, I do think the BDI should have a lower bound. It just has not...
Michael Flanagan is speaking your love language @Hip! “Because of this, the author has also long maintained that the perivascular spaces serve as...
This paper seems to contain a fair amount of new knowledge and speculation but is a great review with lots of references...I will be digesting...
This is a really interesting paper. Thank you. This outlines a lot of what we have been discussing here: “malformations of the base of the skull...
And not just normal fluid dynamics, but what happens in various pathological states. I tried reading about what happens after TBI, for example,...
Unfortunately, I think that there are a lot of paradoxical things happening at the same time. Thinking solely of my case: I did have intracranial...
My money is on sudden restoration of normal blood flow. I base that on nothing but my own subjective experience, and knowing what the metabolic...
I love how polite the study authors were. “You told these people their symptoms had psychosomatic explanations but maybe their brains slipping out...
WHOA. I just found this really interesting study on whiplash and Chiari: https://www.tandfonline.com/doi/abs/10.3109/02699052.2010.490512 I have...
A lot of people have measurements of greater tonsillar herniation when upright v. supine. You’re saying that is largely a function of radiology...
I mean, we do have reason to think CTD cases are relevant to this study at least, as they identified hEDS in 20% of cases. That is actually one...
Right, and my understanding is that 10% will *also* be imaged in Sweden. I think a part of the goal is to compare how observations (measurements)...
Agreed. And this is likely the tip of the iceberg. What is unusual about these cases is how visible they are. I imagine very few lawsuits actually...
[ATTACH] And among neurosurgeons, spine surgeons are most likely to get sued. “Elective spinal surgery cases constitute the majority of...
Have you read the references on the MEpedia page? The people working on this in EDS and ME/CFS have discussed some of the issues you have raised.
I think a part of the problem is there have been very few large-scale brain imaging studies on ME patients. Scratch that—have there been any? And...
Blindness is not an inevitable part of intracranial hypertension. “approximately 1-2% of new cases of IIH are likely to become blind in a given...
Yup, I have permission. The person isn’t a member of the forum. Not sure why they didn’t want to create an account or post, they just said they...
A Norwegian patient helpfully offered a slightly different perspective on the document, which I am pasting here. I obviously can’t read the...
Sounds like you made the right choice for your care!
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