It looks from the picture here that they are adjusting the head in three different planes of motion. I wonder if that is true for all patients...I...
I actually think functional cranial settling was my diagnosis. "Functional" in medicine just means that something doesn't work properly but there...
Yep! And that change in BDI is I believe what is correcting the cranial settling part, in patients who have it. Note the change in BDI between...
Sorry that is a spelling error. It should read "dysphagia," which is difficulty swallowing. Thanks for catching that!
Ah. So in other words, traction normalities a kyphotic CXA. Great find! I've linked to this paper many times before but never thought much about...
Interesting. I was a 65% on that Bulbar brainstem disability index post-thyroidectomy but pre-thyroidectomy, was 50%. But there are a lot of...
My simple answer is I do think traction often corrects the kyphotic CXA re: condylar screw fixation specifically, Dr. Bolognese obviously has...
EDIT: I think I quoted the old version of your question @Trish! Re: the specifics of the occipital condyles and fixation, that is way above my...
Sorry. I missed this as it wasn’t the question I was responding to. With traction, they take hard bone measurements (via fluroscopy) and measure...
Please note that since tethered cord syndrome and CCI are diagnosed based on pathology, rather than symptoms, there are no required symptoms.
I think that is part of the nub here. Jeff, Julie, Karen and I, along with several others, are all here saying that we DO or DID have PEM, yet...
I am not sure I understand what is confusing about what I said. Couldn't agree more that we need proper data gathering. What aspect of the...
Sorry--forgive any duplicates. I have been trouble uploading photos the way mine are formatted Re: the Venn Diagrams. I want to stress that...
EDIT: There are meant to be two images below. One does not appear on some devices. Yes, that's quite possible. Here are all the Venn Diagrams...
If helpful, here is a DRAFT Venn diagram of symptoms from awhile back. I catalogued symptoms mentioned by Ramsay in his 1990s paper, symptoms...
The reason neurosurgeons do CCI surgery in ME patients is not because of their ME symptoms. Or their POTS symptoms. Or their dysautonomia. They...
I’ve unfortunately seen this happen in patients with CCI/AAI. I posted elsewhere about this. I believe I got worse from provactive testing (mainly...
Kaufman and Davis think they do. Hyde thinks EDS increases ME severity. I never knew anyone with EDS pre-ME days and now I know personally dozens...
Hi folks, I am pretty sure I will get moderated as we are not supposed to talk about moderation but I realize that the level and nature of...
No I would not, for all the reasons I have previous explained: https://link.medium.com/b3DcenVE7W Yes, I do think CCI holds a key to our...
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