I know and honestly I have no easy answers. I think what I can say is that this might open up a new area of research or connect to the brain...
Just to add to this, when thinking about the placebo effect, one has to think of the effect size. It's one thing to have 80% of a modest...
I will for the sake of due diligence and to see if a genetic expert might have something more to add to my understanding of my case. However, the...
Yeah, I agree that that legal concept has no role here. Someone did just say that I shouldn’t talk about PEM. Others have said that I should not...
I will in future writing on Medium.
Nasim, you should check out the complete list of symptoms I had prior to my surgeries and the effects of all my treatments (surgical and...
Yes it is subjective but it is also defined subjectively. By that subjective description of PEM in the ICC, I had it in spades and now, I now...
That language isn’t used but a similar kind of thinking happens all the time in medicine. This is because a single case is never “science” in the...
Yeah, there may be symptoms that distinguish ME from CCI and vice versa, but I don’t know what those are and I don’t think that anyone does....
But all science starts with a story. My story isn’t “science” but that doesn’t mean that it is “unscientific.” I am simply relating what I have...
Hi Anil! The symptom criteria are not “clearly distinct” because the symptoms associated with CCI in the literature, in the concept of...
Except that I know I no longer have it....
I actually think we can know this in my case (that CCI was the mechanism causing all my symptoms) for many reasons and no, I don’t think we need a...
I still don’t understand. What have I said about my case is inconsistent? And inconsistent with what? Also, what suggestions have I made? You mean...
I’m really glad you found evidence that outcomes from fusion surgeries is generally good. Is the core concern, then, less surgery itself and more...
More careful with which statements I have made?
Hi @arewenearlythereyet. You can name me. I am right here. I am sorry I missed your question and am even more sorry that the fact I did not...
I don’t think we can have it both ways—that on the one hand, I never had ME to begin with but rather CCI, and therefore my case is of no relevance...
This makes no sense. The surgeries are for people who have been diagnosed with craniocervical instability, based on the criteria of surgeons who...
My ME specialist is planning to. I think he is waiting until there are a sufficient number of cases for a case series and until enough time has...
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