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  1. lansbergen
    Post

    Who to contact to get an FMT clinical trial with high quality donors? Poor donor quality is likely what's keeping this from being an available cure

    I think it does but I decided a long time ago that FMT is not the answer. I think if the underlying cause can be eliminated the microbiome will...
    Post by: lansbergen, Apr 8, 2019 in forum: Advocacy Projects and Campaigns
  2. lansbergen
    Post

    NIH: Accelerating Research on ME/CFS meeting, 4th and 5th April 2019

    I think it is.
    Post by: lansbergen, Apr 7, 2019 in forum: General ME/CFS news
  3. lansbergen
    Post

    Microglia, cells thought restricted to central nervous system, are redefined in new study

    what is the altered state?
    Post by: lansbergen, Apr 7, 2019 in forum: Other health news and research
  4. lansbergen
    Post

    Microbiome testing reports discussion

    Maybe they mean the toxin level in the phagosome is high. Can you not asked them what it means?
    Post by: lansbergen, Apr 7, 2019 in forum: Nutrition, food sensitivity, microbiome treatments
  5. lansbergen
    Post

    Microbiome testing reports discussion

    What do you not understand from this? In cell biology, a phagosome is a vesicle formed around a particle engulfed by a phagocyte via...
    Post by: lansbergen, Apr 6, 2019 in forum: Nutrition, food sensitivity, microbiome treatments
  6. lansbergen
    Post

    Cellular immune function in myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) (2019) Cliff, Nacul et al.

    I agree with the immune system being on high alert and futher more I think the innate system does most of the job.
    Post by: lansbergen, Apr 3, 2019 in forum: ME/CFS research
  7. lansbergen
    Post

    News from Scandinavia

    For me it certainly was a big problem but no way I would let them cut in it.
    Post by: lansbergen, Apr 2, 2019 in forum: Regional news
  8. lansbergen
    Post

    Chapter 15 in Handbook of Sleep Disorders in Medical Conditions - Chronic Fatigue Syndrome and Fibromyalgia, Togo, Kishi & Natelson, 2019

    I did that too and with overall improvement my sleep became better and better. I always was a nightowl and still am but now my body tells me...
    Post by: lansbergen, Mar 29, 2019 in forum: General ME/CFS news
  9. lansbergen
    Post

    On BBC Morning there was a mum and daughter talking about FII

    I think he gives a good description. Doctors should listen and think about it.
    Post by: lansbergen, Mar 27, 2019 in forum: General disability topics and advocacy
  10. lansbergen
    Post

    Study evaluating NICE, Oxford, and Fukuda prevalence

    You are right
    Post by: lansbergen, Mar 27, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  11. lansbergen
    Post

    Open Chronic fatigue syndrome participants wanted for aquatic exercise trial Published 22 February 2019

    I was too. Now I can enjoy a bath.
    Post by: lansbergen, Mar 27, 2019 in forum: Recruitment into current ME/CFS research studies
  12. lansbergen
    Post

    Study evaluating NICE, Oxford, and Fukuda prevalence

    On my computer it is fine.
    Post by: lansbergen, Mar 27, 2019 in forum: Epidemiology (incidence, prevalence, prognosis)
  13. lansbergen
    Post

    The Guardian - Rod Liddle vilifies disabled people. I’m tired of the hate. We all should be (2019) Frances Ryan

    I always thought they are market vendors
    Post by: lansbergen, Mar 26, 2019 in forum: Psychosomatic news - ME/CFS and Long Covid
  14. lansbergen
    Post

    MEAction: Our Community will Not Suffer Stigma and Distortion

    I agree
    Post by: lansbergen, Mar 24, 2019 in forum: General Advocacy Discussions
  15. lansbergen
    Post

    Mechanistic Insights into the Pathophysiology of CFS/ME: Examining Nrf2 Antioxidant Gene Expression & its Role in Combating Oxidative Stress, ongoing

    Their main finding, however, has been that people with ME/CFS have high levels of reactive oxygen molecules, which can harm blood vessels and...
    Post by: lansbergen, Mar 23, 2019 in forum: ME/CFS research
  16. lansbergen
    Post

    Whole blood human transcriptome and virome analysis of ME/CFS patients experiencing PEM following cardiopulmonary exercise testing, 2019, Chiu et al

    There are other infections then virusses. As long as there are no tests for it, it can not be ruled out.
    Post by: lansbergen, Mar 22, 2019 in forum: ME/CFS research
  17. lansbergen
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    1 I will send you a PM 2 It can but I have not found that yet. Other peroxides are a possibility 4 Levamisole scavenges hydrogen peroxide and...
    Post by: lansbergen, Mar 20, 2019 in forum: ME/CFS research news
  18. lansbergen
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    Hydrogen peroxide in high concentration. That can destroy the pathogen I suspect.
    Post by: lansbergen, Mar 19, 2019 in forum: ME/CFS research news
  19. lansbergen
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    I think 2 tried it for a short periode. It has a bad reputation. I hasitated a long time because all the medical trained people I discussed it...
    Post by: lansbergen, Mar 19, 2019 in forum: ME/CFS research news
  20. lansbergen
    Post

    ME/CFS International Research Symposium, March 2019, Australia

    I think the immune system does what it needs to do but because the invader is very hard to destroy it produces toxic levels of the product that...
    Post by: lansbergen, Mar 19, 2019 in forum: ME/CFS research news
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