Yes - the sensory one is the one we were talking about on S4ME before, and the one I was thinking of recently, I looked it up:...
Who’s that? Sonya Chowdhury? https://www.actionforme.org.uk/get-information/about-us/our-staff-team/ I don’t have enough knowledge to comment on...
Yes I know there were huge problems with them then. I wasn’t involved in ME stuff until recently but have seen the threads here. But that doesn’t...
Just to say I don’t think Action for ME are firmly in the BPS camp. They just wrote me an amazing piece of advocacy (letter) which as far as I can...
So that means they’ve got a week left. (I’m in group 4 - clinically extremely vulnerable).
Have found out can contact NHS England this way as well: https://www.england.nhs.uk/contact-us/complaint/complaining-to-nhse/
Yeah I have. He hasn’t replied. Usually takes some time, and doesn’t pick up phone calls.
Lol, my CCG are not even taking on complaints: Unless they deem it comes under immediate patient safety. “Complaints, comments and compliments”...
Still haven’t had the vaccine, tried to contact GP via dr iq online and been told “Nurse will contact you beforehand” when I tried to get an exact...
Yes I’m also not sure to what extent my autism is interacting with my ME. Before I got ill with ME, I did feel pain, but then there were also...
@arewenearlythereyet my sensitivity is very different to that. I experience severe pain when exposed to light and sound, beyond my very narrow...
I had those dilating eye drops (while ill with ME but not as severe), it did make me slightly more sensitive to light but it was a totally...
@cassava7 It’s upsetting tbh that all these people are coming out of the woodwork. I guess it’s to be expected.
I don’t think so. Because the sensory sensitivity that appears in other conditions is very different to that which appears in ME, and especially...
@Esther12 You are missing the point. It’s not about someone recovering from MND (or ME/CFS or any other condition) and trying to do actual...
@Esther12 i am genuinely confused as to how you’re reading his blog. Imagine if, on his recovery from cancer, and that you had cancer, and were...
@Esther12 when I look under Paul Garner’s tweets, or any other tweets responding to similarly minded people, I see vanishingly few tweets that are...
I forgot to say, it comes with 3 different sizes of ear buds to find the right size. I used the smallest one, and it fits really well.
I tried my over ear defenders and they fit over these ones, which means I can use both together, that’s good as well. That person has just...
So I ordered the QuietOn on Amazon U.K to try. I’ve mainly got them for two reasons, one to take with me when I go away from home (the Bose noise...
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