I still haven’t had the vaccine! They keep sending me text messages to come into the surgery. We’ve told them so many times, Dr IQ requests, phone...
Is the LSHTM still going to be involved in DecodeME at all, and in analysing the data or anything - or is it all going to be done at Edinburgh?
Well for me, it’s already made a big difference to my life. I was able to send these guidelines to a legal team. I’ve been able to cite the...
Also - i would hope that the guidelines could at the very least bring about a change in attitudes for most GPs. Even if it’s optional and they get...
@Jonathan Edwards but I would’ve thought a lot has to change - even if GPs only look at it optionally - because the services they’re referring...
Hi @Natalie I was just wondering if you were planning on doing any more films in the Severe / Very Severe ME series? I was just thinking that a...
I think legally, the GET proponent wouldn’t have anything to back up their actions. We now have so many reports of harm, Workwell, NICE...
I can’t remember if I asked this before here, but what happens when the guidelines are released? Do GPs get a notification and told they have to...
For anyone doing this and submitting a story - are you thinking of sending in photos of you before you got ill, or photo after you got ME? I’m not...
What date are the NICE guidelines being released?
I sent the severe ME films to a friend (without ME) - he has always been very understanding of ME,but doesn’t know a lot about it. he watched all...
I’m guessing these films aren’t being shown at the LSHTM in 2021, because of covid? My boyfriend is still not back at work in the library and is...
Hi @Natalie ... I’m so sorry I didn’t reply to this earlier in December when you tagged me. I’m not sure what happened, I seem to have “liked”...
Hi, I have very severe ME and have these same symptoms, I had IBS before developing ME and my stomach and nausea symptoms are worse. Mainly, the...
I just wanted to say, I do not think it is right to say the risk for adverse effects are low. I know people keep saying this is a low dose. But if...
Oh I agree it’s worth publishing what they have - which is why I said I’m glad they did that. But what I don’t understand is why they have been...
@leokitten but people do report side effects at lower doses too, including intrusive suicidal thoughts. People with ME are especially sensitive to...
God these people are so clever at twisting the situation into something it never was. It’s like gaslighting, ramped up to 10000. We are not taking...
I think I’ll still be quite stressed! It’s after 2 doses that the protection is around 70% I think. So I think I’ll still be worried when seeing...
I think soon, within the next couple of weeks. I got a text now saying the GP practice manager has contacted the district nurse so I’ll see if we...
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