This is why the NICE guidelines need to be really, really strict in what they say about Hospital care. I just got another “final offer” from the...
Thanks Andy. After how I feel this morning, I think that I won’t be able to do a submission in time, even a short one. It’s too much for me right...
Does anyone know how to actually use the form they link to? https://www.nice.org.uk/guidance/GID-NG10091/documents/comments-form How do I write...
@Suffolkres Did they say why you weren’t allowed an extension? I too wish I could get one. There’s lots of things happened over the past 2-3...
In this NICE guideline review, could someone point me to the section that provides the evidence for severe / very severe patients struggling to...
Hi I haven’t read through the whole thread and haven’t been following, sorry if it’s been asked, could someone let me know: to make an individual...
It’s a good point. I did notice there were symptoms in the severe section that were actually common to all patients. One worry I have though (not...
What happens with the new NICE guidelines get produced? Do GPs get a notification about it and get told to read it, or will they get a training...
It’s interesting (and I’m really glad) that @PhysiosforME had very similar conclusions about physical activity and increasing physical activity,...
The OTs at my local council / social services do 2 things, either: 1) “Re-enablement”. This seems to be a new thing in which for people who are...
I just wanted to say thank you to S4ME for taking on board my points in the Access to Care section in your submission that you posted. I was too...
@Simbindi - I’ve mentioned this in the relevant thread.
Not to mention, we would then also have to look at all of our recommendations in the submission - and if you look at the running commentaries on...
The NHS website for nausea has recommendations including drinking regular small sips and also to eat small spread out meals. This may well be...
I think the nausea section is good - I think it could go further about symptomatic relief like you mentioned, but the fact it mentions eating...
Based on this, what about the “energy envelope” theory and staying under it, part of activity management? As that’s based on committee experience...
Definitely. I agree this needs to go, I actually think there may be pressure from all the various ME charities so I’m hopeful this will all go....
There isn’t a lot of published evidence about what helps us. If you want to get rid of everything relating to the committees experience, you will...
I forgot to add, soft mattresses, and soft blankets/duvets, and dimmable bedside lights. Dimmable light switches but the lights are not straight...
My perfect hospital: When you go in, you see that the floors are carpeted (like they are in some private hospitals), so that the trolleys and...
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