ME association facebook post: [MEDIA] ARIPIPRAZOLE There has been some discussion about this medication and ME/CFS on social media. Dr CS...
It could do but is there research saying glucose is actually bad for patients with ME, or even could be harmful? All I remember is issues with...
Unfortunately things like ensure may be the only thing that some severe ME patients can tolerate. I have lived for months at a time, or even...
My friend gets a prescription through a hospital dietician, I think, who is part of her gastro team. She doesn’t have ME though. I’m still trying...
From what I remember there were 9-10 months till the expiry date when I last got some - probably not more than a year. I think that’s similar for...
I wonder if people with mild / moderate ME could also benefit from nutritional drinks like Ensure prescribed on the NHS (by a dietician?), not...
An NHS prescription should be free (if on benefits and eligible), or the usual NHS prescription charge (£9.35). The several hundred pounds should...
I think I’ve only been to a dietician once, (if they are the people in Hospital settings?), before I became ill. But since I became ill, no one...
I looked into this a while ago for my pain. I think the current NHS rules is that while Hospital specialists can prescribe if they think there is...
I’m pretty sure I had a thread about this a year or two ago on this forum. Mine came up with a few results for severe genetic illnesses, including...
Yeah. :) I hope though that before the dieticians finalise their advice / programmes, that they get the input of those with ME and speak to...
Yes, there’s so many amazing things in the draft, it’s a complete change of attitude. There’s so much more compassion shown to PwME. Things like -...
I’ve only just realised that in the guidelines it says to refer to a dietitian specialising in ME/CFS if they are losing weight, at risk of...
@ukxmrv yes for sure there are other things going on with you too - it’s just the head parts which I quoted above which fit with what I experience...
Hi, @ukxmrv, I know this might not be any consolation and only you know your symptoms best - but what you have described above which I’ve quoted,...
I had my 2nd Astra Zeneca last week, it’s much better than the 1st dose. I noticed the same increased symptoms as last time, just have been much...
Hmm. This is exactly the opposite of what I experience. My head does not want to flop onto a pillow or do nothing. That sounds more like a problem...
Been thinking about this a lot. Is there a process for challenging NICE once guidelines are out - are any pain charities / groups / people...
So there’s 3 psychologists / psychiatrists on the committee (including the Chair), and another 2 co-opted psychologists / psychiatrists (including...
@InitialConditions I’m not sure if I understand fully. Are you saying that the NICE guidelines have been pushed back partly because they needed to...
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