I agree with what you've written & thank you for doing that. Sometimes there's nothing that can (currently) be done & the Doctors job is just to...
I'm be interested in reading this - access?
If rituximab kills all antibody producing B-cells then, if the "'messy' antibodies" are solely produced by B-cells, rituximab should work? Suppose...
Very interesting thanks - I wonder whether GWAS [common variant genetic study - DecodeME], or indeed a rare variant genetic study*, would provide...
Thanks - interesting insight. @ME/CFS Skeptic
Karl Morten attempted (crowdfund) to raise money to fund ME/CFS research but didn't succeed.
Evidently "one of them" was DecodeME - I'm wondering what the other was?
Akiko Iwasaki is at Yale & Yale researchers have been working on a technique to identify autoantibodies*. However, I do still wonder if this is a...
Surely if you go a Doctor & they cannot explain your symptoms then one explanation is -- well the Doctor is poor? If the Doctor asks colleagues...
I recall that @Jonathan Edwards wrote that the MRC group (he was part of) proposed funding a GWAS [common variant] genetic study [DecodeME] - the...
The only time I attended Nath & Vicky Whittemore were both there --- mingling after their talks. Vicky highlighted that: a rare disease she was...
I wonder if Nath is/was hen pecked i.e. by Walitt? Either way, Nath should have held the line that the evidence wasn't there to support the claims...
I rather like your (SNT Gatchaman) post (from memory) i.e. "Doctors need to demand diagnostic tests ---". I'd tweak that slightly i.e. "we need to...
I recall Angela Vincent saying that 10+ years ago. Yes, I'm a bit worried the Decode ME data may be too heterogeneous i.e. a number of diseases...
Surprised no-one has referred to Bhupesh Prusty i.e. since he was/is interested in mitochondrial fission in ME/CFS.
@Lena Kjempengren , re potential harms, @Tom Kindlon has published on this.
I think I noticed that Jonathan commented that there had been serendipitous cases i.e. where rituximab had been given to people with autoimmune...
Thank you - interesting that "Ian Lipkin applied for a NIH grant for a small GWAS" - hopefully the approach means that the data could be combined...
Thanks Simon & don't feel obliged to reply to this. Interesting --- don't suppose NIH would fund a whole genome sequence study i.e. based on the...
Maybe first step would be to see what DecodeME turns up [results due to be published by middle of 2025?] -- if that supports this theory then the...
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