One of the things that occurs to me, e.g. from Jonathan's comments above, is that the underlying cause of ME/CFS and Lyme are likely the same ---...
Sadly true -- maybe there's a bit of self delusion (professionals delivering the service) --- we know it works --- but I don't think that is an...
Yea - by even checking employment status/participation in education post 6 months, year --- you'd pick up that this wasn't delivering!
"not on his list" surely a completely unknow genetic fingerprint/organism would stick out like a sore thumb? DecodeME will hopefully provide clues...
I think Jonathan's point (above) is interesting i.e. it could be something "normal" just that you're reacting to it - recent award to Ruth Ley...
I think a + signal in DecodeME [GWAS] would strengthen the case re immune response to a pathogen e.g. in Alzheimers [GWAS] immune genes turned up...
If I was assessing these interventions, i.e. to assess whether it was appropriate to fund them, then I'd try to: assess economic benefit -- if...
I'd expect there are @Jonathan Edwards types - trying to provide better outcomes (and getting frustrated!). But yes, we need the charities to...
Yip - particularly when the NHS is using already trialling/using them then they can't exactly be fringe! There was also research in Aberdeen...
Yip, brief look online years ago indicated that the (much poorer/early) wearable were better at assessing activity versus subjective "user...
Yea we need to be careful that perfection becomes our enemy --- the data needs to be good enough to say -- yes this persons activity has...
Ah me not keeping up/see the issue now - Sarah Tyson received £90K to develop a toolkit to assess clinical outcomes and it (solely) uses...
"I think the main problem with blinding is that those receiving 500ml will be desperate for a pee within half an hour." --- laughing!
I know I'm quoting selectively from your post. @Jonathan Edwards was part of the MRC group which was asked to identify research opportunities for...
Actually I'd wondered if I should have worded that statement differently. E.g. I recall a brief spat I had with the charity which acted as...
I think these folks will sell their model for anything --- they've expanded into Long COVID? To be "fair" @Jonathan Edwards has pointed out that...
Actually I wonder if the +ve is that you get to interact with someone - @Jonathan Edwards pointed out that carers/medical professionals could just...
Actually I wonder if it's worse than that i.e. the system has incentives that/encourages this crap - give patients something like this, get some...
Reminds me of an unsavoury character(s) who was languishing in prison (Romania?) who made money out of training the gullible - interesting that...
Yea - I think part of it is understanding e.g. you've pointed out that when you visit a rural clinic in Switzerland, they have Doctors who work...
Separate names with a comma.
