Like many, I'm intrigued what the elusive NICE driven care plan is, whether agreed or otherwise. I've been referred to a 'CFS' clinic in London...
For those interested, there is an open letter that can be signed, that has been produced to raise awareness with Sajid Javid over the current...
That's a pretty stellar line-up imho
I've had a grip test and later tests that showed what was described as 'metabolic impairment', or, the muscles running out of energy really...
Website SEO and Google ads is not my speciality, but, I see ads for all sorts of companies appearing when I search for stuff, so, what’s different...
Thanks for this Peter and for the effort you are going to here and on other platforms. I guess the conundrum with it all is how likely is any of...
And some wonder why many of us have lost faith with the MEA (and other charities)..
Saw this shared on Twitter. Am part way through this and it's quite interesting and shows how, I guess, diluted fund-raising and spending is with...
The World ME Alliance is asking for videos of pwME to be part of their campaign this year. It's a short scripted video to be uploaded by 1st...
I'm just curious if PG warned Fiona whatshername what she was letting herself in for when signing a letter with him. Did he say 'they will come...
Watched it over the course of the evening yesterday, it's a very powerful evidence session and great that Dr. Taylor kept referring to ME in terms...
The fact that it names and shames Wessley and Sharpe is excellent and will no doubt have been through some checks to make sure it's ok to name...
Sadly, it's a common gripe with the APPG. The short video that Carol Monaghan did on Twitter wasn't much more enlightening - but, I will...
Oh, that is a thing of beauty!
On Twitter he is @magnetojj if that helps anyone find him. Am due to be snapped by him this week all being well. ETA:...
If memory serves, APPGs have to be re-formed (or whatever the appropriate parliamentary terminology is) after every election too. Wonder how many...
No probs sharing. Thanks.
Have had an initial response from Andrew Morris, advising that he stood down as Chair in 'Spring 2023' and someone named Simon Chandler took over....
With ME Awareness Day coming up in May, should be an opportunity to build on this coverage with some kind of follow-up - you would hope.
[MEDIA] There is then a full APPG meeting after the AGM according to AfME. This grates my gears somewhat; I appreciate that they are busy and...
Separate names with a comma.
