Unsurprisingly, the moment it was over, my health got quite a bit better. But it was worth it for the outcomes we achieved.
Awww, shucks, that's lovely! Thank you! I've just rewatched the video and there was so much more I could've said, but not enough time in the...
It might be a FB thing? I've gone back and set it as an attachment.
Thank you, Trish!
So I think if you want to have impact with this, you need to match it with publicity. #MEAction UK typically arrange a photo shoot when they...
Thank you! I'm not sure if anyone can see this, but this is us just after the ceremony: [ATTACH]
Probably. I think lots of people changed their minds about a lot of things during that process. We ended on very positive terms with NICE and the...
So my day-to-day engagements were with Rupert Franklin at NICE (and Simran at the NICE PIP team), Kate Kelley at the NGC/RCP, and the chair and...
Yes, that's right. Some of the studies didn't even mention PEM. They just said which criteria they used. Others just referred to fatigue worsened...
My guess is that maybe "positive social identities" means "an identity that means you feel you can still contribute to/have a place in society...
You're welcome. It's always a pleasure to chat to our Dave! :D Yes, we discussed that at great length. And the ICC and CCC fell behind in the...
Oh yes, they're definitely empire builders.
I had similar concerns about that clinic's responses, but I don't know who wrote them.
Let's do it!
I'd be happy to join them, if we three can pen something?
Reading their briefing, it seems their complaints are minor. The GL already says you can consider reviews more frequently than six months, so that...
It also suggests NICE knew that the criteria might need to be changed and that evidence would have to be downgraded if these new criteria were...
I think there will always be loopholes. I think we avoided the ones we could, but it wasn't possible to close all of them. And we probably had to...
That's the one. Thanks, Mithriel.
I think we've asked that very question on here before, and it wasn't clear. But I think they meant people referred to the clinic who ended up with...
Separate names with a comma.
