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  1. MEMarge
    Post

    United Kingdom: News from Forward-ME Group

    When the APPG was restarted, they were investigating 4 or more topics, for info see thread entitled "UK: All Party Parliamentary Group (APPG) on...
    Post by: MEMarge, May 3, 2022 in forum: News from organisations
  2. MEMarge
    Post

    FII (fabricated and induced illness), and the new ME/CFS guideline

    We avoided FII as our daughter was nearly 17 when seen at Great Ormond St, but hear from so many parents on Facebook and elsewhere of the ongoing...
    Post by: MEMarge, May 3, 2022 in forum: UK clinics and doctors
  3. MEMarge
    Post

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    Now, less than £500 96% £11,589 raised of £12,000 target by 208 supporters
    Post by: MEMarge, Apr 29, 2022 in forum: Fundraising
  4. MEMarge
    Post

    FII (fabricated and induced illness), and the new ME/CFS guideline

    Thank you @Suffolkres
    Post by: MEMarge, Apr 28, 2022 in forum: UK clinics and doctors
  5. MEMarge
    Post

    Blog: Regulators turn a blind-eye to conflicts of interest By Dr Peter Wilmshurst

    Possibly a useful contact for @dave30th re psychiatrists and Unum etc, plus not sticking to the Declaration of Helsinki.
    Post by: MEMarge, Apr 28, 2022 in forum: Research methodology news and research
  6. MEMarge
    Post

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    Now, less than £750 to go 93% £11,262 raised of £12,000 target by 201 supporters
    Post by: MEMarge, Apr 28, 2022 in forum: Fundraising
  7. MEMarge
    Post

    International: IACFS/ME - International Association for CFS/ME, IACFSME

    I think that last year, when it was virtual organisations could pay to view the talks. MEA did this and produced several reports:...
    Post by: MEMarge, Apr 28, 2022 in forum: News from organisations
  8. MEMarge
    Post

    FII (fabricated and induced illness), and the new ME/CFS guideline

    Tilly does refer to NG 206 above, ie the ME/Cfs one https://www.nice.org.uk/guidance/ng206/chapter/Recommendations#safeguarding Still not really...
    Post by: MEMarge, Apr 28, 2022 in forum: UK clinics and doctors
  9. MEMarge
    Post

    Vagus Nerve Stimulation

    Thanks for the laugh
    Post by: MEMarge, Apr 20, 2022 in forum: Other treatments
  10. MEMarge
    Post

    Long Covid in the media and social media 2022

    Welcome @LarsSG, glad you've joined us.
    Post by: MEMarge, Apr 20, 2022 in forum: Long Covid news
  11. MEMarge
    Post

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The Stockport Service actually gets very good feedback and support from the local ME group.
    Post by: MEMarge, Apr 5, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  12. MEMarge
    Post

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    See Direct Message, ie Conversation @Suffolkres
    Post by: MEMarge, Mar 29, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  13. MEMarge
    Post

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    Thanks for the additional info @Tom Kindlon. Keith does very valuable work on behalf of PwME and sadly the BPS approach to us is far from over.
    Post by: MEMarge, Mar 28, 2022 in forum: Fundraising
  14. MEMarge
    Post

    UK: NIHR funding opportunity: 22/37 Non-pharmacological interventions for fatigue management in adults with long-term health conditions

    So, synthesis of evidence, with no specific objective measures of activity/being able to do more physically or cognitively, specified. More...
    Post by: MEMarge, Mar 25, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  15. MEMarge
    Post

    UK: NIHR funding opportunity: 22/37 Non-pharmacological interventions for fatigue management in adults with long-term health conditions

    HTA award was for £75,432.00 https://fundingawards.nihr.ac.uk/award/97/41/08 "Headline: Group cognitive behavioural therapy was found to be as...
    Post by: MEMarge, Mar 25, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  16. MEMarge
    Post

    UK: NIHR funding opportunity: 22/37 Non-pharmacological interventions for fatigue management in adults with long-term health conditions

    This is the last HTA on CBT in CFS from 2006 https://www.journalslibrary.nihr.ac.uk/hta/hta10370/#/abstract Run in Bristol by Hazel O'Dowd, P...
    Post by: MEMarge, Mar 25, 2022 in forum: Psychosomatic news - ME/CFS and Long Covid
  17. MEMarge
    Post

    ‘We suppressed our scientific imagination’: four experts examine the big successes and failures of the COVID response so far

    Some good comments: "Sheena Cruickshank, Professor in Biomedical Sciences, University of Manchester Immunological discoveries have been critical...
    Post by: MEMarge, Mar 24, 2022 in forum: Long Covid news
  18. MEMarge
    Post

    (2022) "Weʼre raising £16,000 to Continue Dr Geraghty's Vital ME/CFS Research"

    @Keith Geraghty I think that your work challenging the psychogenic ideas about ME by the BPS brigade over the years has been very effective. I...
    Post by: MEMarge, Mar 22, 2022 in forum: Fundraising
  19. MEMarge
    Post

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    @PhysiosforME do you have some feedback for this?
    Post by: MEMarge, Mar 14, 2022 in forum: 2020 UK NICE ME/CFS Guideline
  20. MEMarge
    Post

    United Kingdom - National Insitute for Health Research (NIHR) news

    Funding for a Core Outcome set would be good It needs to include objective outcomes, as said so many times before. People with ME want to be...
    Post by: MEMarge, Mar 13, 2022 in forum: News from organisations
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