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  1. sb4
    Post

    New poor Guardian article "ME and the perils of internet activism" 28th July 2019

    @large donner Yeah thats right. Problem is, somewhat understandably, the average person will look at an article they don't know much about and...
    Post by: sb4, Jul 28, 2019 in forum: General Advocacy Discussions
  2. sb4
    Post

    The IDO Metabolic Trap Hypothesis for the Etiology of ME/CFS 2019 Kashi, Davis, Phair.

    @Michiel Tack I think the trap explanation for differences in severity and symptomatology is the number and type of cells trapped. ME only effects...
    Post by: sb4, Jul 26, 2019 in forum: ME/CFS research
  3. sb4
    Post

    Ketogenic diet

    It helps me with my post meal symptoms that come on from carbs so pretty good. Those symptoms where pretty brutal and I suspect it was nothing to...
    Post by: sb4, Jul 26, 2019 in forum: Other treatments
  4. sb4
    Post

    Altered Erythrocyte Biophysical Properties in Chronic Fatigue Syndrome, 2019, Saha, Davis, et al

    Earlier in this thread it was said that capillary diameters cannot be increased so best to focus on improving RBC deformability. I am just...
    Post by: sb4, Jul 18, 2019 in forum: ME/CFS research
  5. sb4
    Post

    Chapter 29 - Clinical neurophysiology of postural tachycardia syndrome, 2019, Sandroni et al

    It's kind of like someone punching you in the arm and saying it only hurts because your focusing on it excessively. I have brought up pounding...
    Post by: sb4, Jul 17, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  6. sb4
    Post

    Chapter 29 - Clinical neurophysiology of postural tachycardia syndrome, 2019, Sandroni et al

    I agree. I am being "treated" by my POTS doctors for deconditioning and hyper-vigilance despite these diagnoses making no sense and I have made...
    Post by: sb4, Jul 17, 2019 in forum: Cardiovascular and exercise physiology (CPET)
  7. sb4
    Post

    My podcast: Medical Error Interviews

    Hey @ScottTriGuy I like the idea, do you have any links for non itunes versions?
    Post by: sb4, Jul 16, 2019 in forum: General disability topics and advocacy
  8. sb4
    Post

    Mitochondrial alterations in NK lymphocytes from ME/CFS patients, 2019, Silvestre et al

    "ME/CFS patients have difficulties controlling viral infections and many develop non-Hodgkin’s lymphoma." Does it say in the full text how many...
    Post by: sb4, Jul 14, 2019 in forum: ME/CFS research
  9. sb4
    Post

    Glucose Metabolism Drives Histone Acetylation Landscape Transitions that Dictate Muscle Stem Cell Function, 2019, Blau et al

    Thanks @Andy I have set everything up, will see if it works tomorrow.
    Post by: sb4, Jun 27, 2019 in forum: Other health news and research
  10. sb4
    Post

    Glucose Metabolism Drives Histone Acetylation Landscape Transitions that Dictate Muscle Stem Cell Function, 2019, Blau et al

    Where do these emails come from? Is it a computer algorithm that picks up new papers on PubMed etc?
    Post by: sb4, Jun 27, 2019 in forum: Other health news and research
  11. sb4
    Post

    Cardiolipin-induced activation of pyruvate dehydrogenase links mitochondrial lipid biosynthesis to TCA cycle function, 2019, Greenburg et al

    Very interesting. Ties the PDH stuff to the high levels of Cardiolipin antibodies.
    Post by: sb4, Jun 14, 2019 in forum: Other health news and research
  12. sb4
    Post

    Stanford Community Symposium 2018: Phair, Metabolic traps, Tryptophan trap

    Could you tell me more on the Tyrosine gene/trap?
    Post by: sb4, Jun 9, 2019 in forum: ME/CFS research news
  13. sb4
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    That's fair enough, I shouldn't have said that. I don't know what dog piling is either but I think it means everyone piling up on one person. What...
    Post by: sb4, May 30, 2019 in forum: ME/CFS research news
  14. sb4
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    It seems like the overwhelming majority of posts that show up in my feed are critical of how @JenB has handled this, feels like dog piling. I...
    Post by: sb4, May 30, 2019 in forum: ME/CFS research news
  15. sb4
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    I have no problem with people saying that CCI surgery / traction can be dangerous, it may only affect a small portion of people, there recovery...
    Post by: sb4, May 27, 2019 in forum: ME/CFS research news
  16. sb4
    Post

    EDS, hypermobility, and the link, if any, to ME/CFS

    I don't think Lyme and CCI is necessarily any more difficult to link than CFS and CCI. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3751012/ That...
    Post by: sb4, May 27, 2019 in forum: Fibromyalgia and Connective Tissue Disorders
  17. sb4
    Post

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    @Hip I think we have talked about this before but within weeks of getting ill with this my gums receded massively. I remember thinking all my...
    Post by: sb4, May 25, 2019 in forum: ME/CFS research news
  18. sb4
    Post

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    @Trish The way I am looking at it is, if I didn't have CFS and I came across MEAction how would it affect my opinion on ME? For me, personally, I...
    Post by: sb4, Apr 26, 2019 in forum: General ME/CFS news
  19. sb4
    Post

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    Whilst it is true that it will connect well with a certain audience, it will also put another audience right off. If MEAction is okay with adding...
    Post by: sb4, Apr 26, 2019 in forum: General ME/CFS news
  20. sb4
    Post

    #MEAction: Toxic Masculinity Made my ME Much More Punishing

    I don't like this kind of content at all. I don't think mixing feminism and ME is productive to ME advocacy.
    Post by: sb4, Apr 25, 2019 in forum: General ME/CFS news
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