Great letter! One small point - in the signatories, you have Robert Naviaux as being in San Diego, California, UK. I'm pretty sure California is...
I believe this is the online survey:...
Two new articles in The Guardian: Devon woman died from malnutrition due to severe ME, coroner concludes...
I don't have POTS (though I do have OH) but also react in much the same way as Milo with epinephrine in dental anaesthesia.
I had a look at the webpage on which the Benefits and Work article is based, and it doesn't actually mention ME/CFS as such. That seems to have...
My understanding is it's a representative sample of the population who are being tested. If 1% test positive, that can be extrapolated to 1% of...
It's run by the UKHSA now, here https://ukhsa-dashboard.data.gov.uk/
https://www.gov.uk/government/news/ukhsa-and-ons-release-latest-winter-covid-19-infection-study-data So it seems they are still doing the random...
In response to point (ii), the first question is "In what capacity are you responding to this survey?" with the following options as responses An...
They are still updating the data at https://coronavirus.data.gov.uk/ I'm not sure how complete it is, of course. The Zoe study is also still...
I also have been invited under the new criteria. Like Peter, I assume I was excluded originally because of other conditions. Similarly, I have...
Full access in UK
The section that mentions ME is the second half of a paragraph, and doesn't say much. The full quote is: "Another example relates to the activism...
Moved posts The new update seems to be up on youtube now [MEDIA]
They have now https://www.nice.org.uk/guidance/ng206/documents/minutes-31
This was the company's news release on the phase III trial, published 15/9/21 on their website...
the (uncorrected) transcript is now up online...
They did at least admit that the delay was caused by the protestations of clinicians about removing GET. IF only they could get their heads round...
There should be a transcript on Hansard tomorrow, assuming it's the same as for the House of Commons.
From the little I read of the paper (very little - I don't have the brain cells to make sense of it), it certainly seems quite a leap to draw the...
Separate names with a comma.
