It is very time consuming to get decent data about the UK funding: with the MRC in the past, when I have asked for or searched for trials/studies...
I'm afraid all my funding analyses are way out of date. But I'm pretty sure that my comment about the total spent on biomedical research into ME...
I'm afraid that my brain cells are slowing down, and I have a couple of areas that I am looking at at the moment. I'll happily look at it when...
Personally, I think we have pretty much nailed the PACE coffin: any further analysis would just be repeating what a bad trial it was: unless, of...
Possibly not. I have been pushing for some detailed data from Bristol for one of the Crawley studies, and they have produced an agreement to sign...
The truth is that, as far as we discovered in our FoI study on the clinics, virtually none of them have any reliable way of checking their...
I think it is vital to keep everything to a minimum, in order to make it as easy as possible for the patient to respond. This is my thinking, so...
Yes, but I managed their improvement with just a few exhortations: does this make me a super-pro? As far as normalizing scores are concerned, I'd...
I carried out a survey among people I knew, friends of friends, and other contacts who had ME and asked them to fill in the Chalder Fatigue...
Actually, I tried an experiment on my local ME support group a while back, while explaining the problems with PACE. I asked them to fill out the...
Good point Trish. As I said, the aim was to straighten out my thinking, and you are all certainly doing that. Sincere thanks! Thinking back to my...
True enough, but suppose their aim was to give patients an appropriate diagnosis, teach them about pacing and boom and bust, offer help with pain...
Thanks everyone for helping me think more clearly about this matter. I've got a lot more thinking to do yet. Some quick thoughts. The...
Coming from education, as Head of Maths, I was answerable to parents, the head and to the governors. That wasn't a superficial chat either: for...
The sf-36 asks questions along the lines of whether a patient has no difficulty, some difficulty or a lot of difficulty with, say, climbing...
I'm not interested so much as how the clinics make us feel, but many of us have forgotten the long time we spent waiting for a diagnosis,...
I'm just floating ideas here, and would appreciate some feedback. I have been thinking about the difficulties that ME centres have in measuring...
But there are certain skills you learn in flower arranging that can help. For example, to deal with wilting flowers you stand them up to their...
I wonder whether this will turn out to be relevant: https://www.quantamagazine.org/nobel-prize-awarded-for-cells-adaptations-to-oxygen-20191007/
I think Jon's submission to the Scottish government hits the nail on the head, but there also needs to be a more approachable version for folk who...
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