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  1. Lucibee
    Post

    FINE trial patient booklet 29/04/05 Pauline Powell

    Just wondering... I've had a look at Wayback Machine to see if any of the other documents had been archived, but although some were, the links no...
    Post by: Lucibee, Aug 23, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  2. Lucibee
    Post

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    He revealed that on the radio a few weeks ago too... [CW: descriptions of surgery] https://www.bbc.co.uk/programmes/m000vgfs (from about half way...
    Post by: Lucibee, Aug 23, 2021 in forum: UK clinics and doctors
  3. Lucibee
    Post

    FINE trial patient booklet 29/04/05 Pauline Powell

    Since "pragmatic rehabilitation" seems to be popping up in Long Covid clinics, I thought it would be as well to link a few threads together (as it...
    Post by: Lucibee, Aug 23, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  4. Lucibee
    Post

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just seen a post about this by Action for ME that answers your question...
    Post by: Lucibee, Aug 19, 2021 in forum: Long Covid news
  5. Lucibee
    Post

    Twitter issues

    That's weird. If I view as not logged in, I can still see it (on PC). Sorry - that's unhelpful. But if you ever need a transcript of anything,...
    Post by: Lucibee, Aug 17, 2021 in forum: General Advocacy Discussions
  6. Lucibee
    Post

    Twitter issues

    That just means you're not logged in.
    Post by: Lucibee, Aug 17, 2021 in forum: General Advocacy Discussions
  7. Lucibee
    Post

    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    Is this the correct one? https://bmjopen.bmj.com/content/1/2/e000252 (Thread:...
    Post by: Lucibee, Aug 9, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  8. Lucibee
    Post

    Clinical and cost-effectiveness of the Lightning Process ... for paediatric chronic fatigue syndrome, 2018, Crawley et al (Smile Trial)

    Just checking back. The intention in the SMILE protocol was that they would check against school records - but the trial paper doesn't state that...
    Post by: Lucibee, Aug 9, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  9. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Re Recovered person - what about @phil_in_bristol ?
    Post by: Lucibee, Aug 5, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  10. Lucibee
    Post

    Gez Medinger videos: Part 1 Pacing - Ben Marsh, Part 2 GET - Todd Davenport et al.

    Episode 8 has just been posted. It covers Pacing, and the promised part 2 looks quite juicy... (you'll have to skip to the end to find out why)
    Post by: Lucibee, Jul 13, 2021 in forum: Resources
  11. Lucibee
    Post

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    Good rapid response from Peter D. White (no, not that one!): https://www.bmj.com/content/373/bmj.n1559/rr-3
    Post by: Lucibee, Jun 26, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  12. Lucibee
    Post

    BMJ: Chronic fatigue syndrome and Long Covid, moving beyond the controversy, 2021, Newman

    He may well have done that, but not to set up a GET clinic. And wasn't that another flaw of PACE? I seem to remember noting in the trial steering...
    Post by: Lucibee, Jun 26, 2021 in forum: Psychosomatic news - ME/CFS and Long Covid
  13. Lucibee
    Post

    Stuart Ritchie, science journalist, articles on science fraud and open science

    Why doesn't he just employ an editor?
    Post by: Lucibee, Jun 25, 2021 in forum: Research methodology news and research
  14. Lucibee
    Post

    Who said: don't bother testing patients?

    Just updating as the link to the MUS leaflet now seems broken - However, this one has been archived:...
    Post by: Lucibee, Jun 24, 2021 in forum: General ME/CFS news
  15. Lucibee
    Post

    Adverse outcomes in trials of graded exercise therapy for adult patients with chronic fatigue syndrome, 2021, White & Etherington

    The first thing I thought when I saw the abstract of this paper was this: [MEDIA] Having now seen the paper, I don't think they provide an...
    Post by: Lucibee, Jun 5, 2021 in forum: Psychosomatic research - ME/CFS and Long Covid
  16. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Thanks Hilda.
    Post by: Lucibee, Jun 2, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  17. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    The blog I posted is simply a repeat of the submission I made. I've only just found it on the list - I'm at no. 42.
    Post by: Lucibee, Jun 1, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  18. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Oh - I thought making a submission would add me to the list. *sigh*
    Post by: Lucibee, Jun 1, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  19. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I've not received anything. I don't think I was ever included in the list. I suspect, as usual, I have completely misunderstood what the process...
    Post by: Lucibee, Jun 1, 2021 in forum: 2021 Cochrane Exercise Therapy Review
  20. Lucibee
    Post

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    I'm not in Pago Pago
    Post by: Lucibee, May 31, 2021 in forum: 2021 Cochrane Exercise Therapy Review
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