She specifically said "a few months". I know there is a pandemic on, but this is important for those with LongCovid too. [MEDIA]
Time is of the essence. I thought she meant weeks, not years!
I don't understand. So this meant nothing? [MEDIA]
Sorry for not being up to speed on this, but are the IAG waiting for NICE? Because that seems to be the wrong way round. If I'd known that were...
Pretty much. Which is why (as I've said all along) PACE will never be retracted. They would only do so if they were sufficiently embarrassed by it.
Re-upping: https://lucibee.wordpress.com/2018/05/09/pace-trial-whatever-happened-to-actigraphy/
Unfortunately, these views seem to be gathering in prevalence. meh.
Moved post I'm not sure where else to put this - I don't think merits the status of its own thread (so please don't elevate it thus!):...
A reminder of White's version of "recovery": Where "normal range in fatigue" is CFQ score <18 (anything above 11 means that the patient has had...
Unfortunately, it doesn't though. Because these researchers work mainly in the mental health field, "recovery" to them means something different....
There is also a conflation of PEM with fatigue: "A characteristic feature [singular] is postexertional malaise or fatigue." Do they not know that...
:( I do worry that I spent a lot of time preparing something and then putting it into a big black hole never to see the light of day again. Oh well.
Is anyone receiving updates about the IAG and its progress? I sent my submission in April, but have not heard anything back yet. I also posted...
I haven't posted on here for a while, so here's what I've been up to over the summer: [MEDIA] I've made nearly 200 of the things now! I use...
I do wonder whether people (who have never experienced fatigue or are not familiar with ME) simply get confused with the term "pacing" and think...
And the response from the MEA: MEA Statement: NHS England Guidance on the Management of Post-Covid Fatigue Syndromes...
It comes from page 20 in the latest version here:...
Moderator note This post and several following have been moved from this thread: NICE Statement about graded exercise therapy in the context of...
I can recommend Streiner and Norman's book, "Health Measurement Scales", as a useful reference in this regard. See also:...
Particularly in the light of the editorial that preceded it... https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(05)64917-3/fulltext
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