@sarahtyson Thanks for stopping by again to this thread and sharing your thoughts. It's really helpful for us as patients and, I think, for you...
Facebook encourages one to fund-raise for their birthday. The first year they suggested it, I chose the Solve ME/CFS Initiative (which was also...
Thank you so much for this, @Grigor. I'm going through the worst, most sustained crash since The Great Crash of Autumn 2020 and it's been rough....
You may remember Adam Mastroianni from such threads as this (about why peer review is crap) or this (about how people believe things could be...
I know I've already mentioned my own experience with clotting and anticoagulants here on the forum, but just in case anybody new is reading this,...
So I take it these were patients with provoked PE, like surgery or air travel or something? Or did they include patients with unprovoked PE? Would...
This is true but they also usually involve a paid union organizer (the Amazon warehouse union may be the exception that so far proves the rule)....
Ok, I'll go ahead and have a go at arguing (tentatively) for the pro-PGD position as I think currently the discussion in this thread is fixating...
This may be violating the "no politics" rule so I understand if it gets deleted but I do think the union movement needs to think beyond trades and...
Lenny Jason probably came up with the best "screening" tool to distinguish depression from chronic illness: simply ask a patient "if you felt well...
I don't think cost is the problem. My Tri-Axis pedometer, which seems to be more accurate than, say, a FitBit, is only about $25. I wear it...
I don't disagree with any of this but, to be fair to @sarahtyson, she might say the same thing about us. She might argue that we were dismissive...
I have severe ME/CFS and for the most part, step count variations can be pretty significant when you go from 600 to 50 (and vice versa). What's...
As an American, I wanted to add a little nuance to the discussion. If we want to make, say, the Sacklers the scapegoat villains in all this,...
And THAT is why we have BPS medicine: to give providers a way to not have to deal with the discomfort that comes when they can't actually do much...
Thanks for sharing your experience. It's one of those things that because we don't understand the mechanism of action in ME/CFS, it's been...
Can't help but grimly chuckle where the doctor at the end of the piece has to scold women about not eating sweets and making sure to get 7 hours...
I'm perimenopausal and my answer to the poll so far would be one that's not available: both. I started having late/missed periods in 2019. After...
Oh also I should note that I'm not as concerned necessarily with the term "psychometric." My understanding is that it simply means a way of...
@sarahtyson I too want to welcome you to the forum. While we can be a pedantic, curmudgeonly bunch, we're all about the science at the end of the...
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