Discussion about Blitshteyn here regarding PEM and GET. She doesn't get it.
"I suddenly believed I would recover completely" and avoiding pwME experiences is what he thinks saved him.
From my own observation is that some of these medications work short-term for some pwME and then stop working.
Same here in Canada with the extreme temperature changes from outdoor to indoor buildings in the winter. I start to strip off all my layers as...
I was advised a few times to 'do nothing' by an ME specialists early in my illness. I told him I had stuff to do and that I live alone so no one...
MD PhD would typically be the type of person that would take a NIH academic role. But the reality is he is extremely poor at interpreting...
It seems that some T2 diabetes drugs such as Metformin and GLP-1 agonists are showing promise for other health conditions.
No evidence of immune exhaustion after repeated SARS-CoV-2 vaccination in vulnerable and healthy populations, 2024 LINK
Jay Bhattacharya to head the NIH. Authored the Great Barrington Declaration, calling to let the virus spread, in October 2020. The signing was...
I wonder about that Internist I saw 30 years ago who told me he believed in CFS but didn't believe it could last for 10 years thinks now that...
New Data: The Most Promising Treatments for Long COVID · Low-Dose Naltrexone · Selective Serotonin Reuptake Inhibitors (SSRIs) and...
Same. Colder temperatures can also help with orthostatic intolerance.
The 'yes' is me :) because I did intentionally limit my energy for 5-6 years doing ART after a relapse from returning to work. I thought it was...
I've heard of breathlessness referred to as 'air hunger' known as Dyspnea is the word healthcare providers use for feeling short of breath....
My ME specialist advised me to do nothing or limit my energy expenditure when I started feeling better years ago. The cumulative consequences...
There are different issues that can cause breathlessness. My breathlessness was/is ME related. My ferritin and magnesium stores were below...
To add, it took another 5-6 months to fully recover back to my baseline.
I don't think my threshold has ever increased even when felt 90% improved. It just got worse the more I pushed myself into delayed PEM.
I restricted my activities for 6 years but the delayed PEM still occurred as if I didn't rest at all. Those were the earlier years. You can...
Be careful guys! I thought I recovered after 3.5 weeks, waited a week to be sure before I did anything strenuous, went for a wonderful 50...
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