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  1. Joan Crawford
    Post

    Trial Report REFUEL-MS - CBT/GET Digital Intervention MS-Fatigue

    tReatmEnt for FatigUe in multiplE scLerosis Reading this hurt my eyes. The mind boggles about what pwMS must be thinking about it :ill:
    Post by: Joan Crawford, Jul 13, 2023 in forum: Other psychosomatic news and research
  2. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Hello there, do you (or anyone on here) have a link or reference to the German IQWIG and Dutch studies/reports? Thanks
    Post by: Joan Crawford, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  3. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good question. I suspect many have never treated anyone with CBT as they are probably not trained CBT therapists or psychologists who have...
    Post by: Joan Crawford, Jul 13, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  4. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Please do @ME/CFS Skeptic It would be a useful addition to the debate.
    Post by: Joan Crawford, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  5. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good to see :hug:
    Post by: Joan Crawford, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  6. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    This is excellent :)
    Post by: Joan Crawford, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  7. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good spot :thumbup:
    Post by: Joan Crawford, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  8. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    100% They will not stop. For some of 'them' it is a game. No matter about science, knowledge, decency, reliability, validity or any such thing....
    Post by: Joan Crawford, Jul 12, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  9. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Brilliant :thumbup:
    Post by: Joan Crawford, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  10. Joan Crawford
    Post

    Gentle(st) stretching routine

    Really sorry to hear this @rvallee I hope that this settles down for you. Rough business.
    Post by: Joan Crawford, Jul 11, 2023 in forum: Home adaptations, mobility and personal care
  11. Joan Crawford
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Spot on :)
    Post by: Joan Crawford, Jul 11, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  12. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    It is embarrassing this got published in a journal. Good to hear from you that this is a small cohort. I hope they are becoming more isolated...
    Post by: Joan Crawford, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  13. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    This is in a newspaper - not a response to the journal editor. Do NICE respond to critical peer-reviewed journal articles like this - via the...
    Post by: Joan Crawford, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  14. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    Good to see. Will NICE be likely to respond to the journal editor? For publication. Is there a precedent for this?
    Post by: Joan Crawford, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  15. Joan Crawford
    Post

    Anomalies in the review process and interpretation of the evidence in the NICE guideline for (CFS & ME), 2023, White et al

    There needs to be a strong, clear, unanimous response to this paper from those on the NICE Committee and those that gave expert evidence, along...
    Post by: Joan Crawford, Jul 11, 2023 in forum: 2020 UK NICE ME/CFS Guideline
  16. Joan Crawford
    Post

    Efficacy of cognitive behavioral therapy targeting severe fatigue following COVID-19: results of a randomized controlled trial 2023, Kuut, Knoop et al

    Thanks for that top tip @Mark Vink I shall do that.
    Post by: Joan Crawford, Jul 10, 2023 in forum: Psychosomatic research - ME/CFS and Long Covid
  17. Joan Crawford
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Thanks Arvo. That's very kind of you :)
    Post by: Joan Crawford, Jul 10, 2023 in forum: Psychosomatic theories and treatments discussions
  18. Joan Crawford
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    Thanks for that. I shall take a wee look. @dave30th I shall see if a response would be worthwhile given my earlier rejection re CODES....
    Post by: Joan Crawford, Jul 10, 2023 in forum: Psychosomatic theories and treatments discussions
  19. Joan Crawford
    Post

    The Observer/Guardian article: Does the microbiome hold the key to chronic fatigue? About patient led 'research' group Remission Biome.

    I am one of the lucky ones with a pretty good lottery ticket. I do not experience the severe ME type symptoms that I did for 25 plus years...
    Post by: Joan Crawford, Jul 10, 2023 in forum: ME/CFS research news
  20. Joan Crawford
    Post

    Functional Neurological Disorder (FND) - articles, social media and discussion

    @dave30th - can you share a link to Stone's essay. My letter to the editor re CODES trial was not published due to Covid.
    Post by: Joan Crawford, Jul 9, 2023 in forum: Psychosomatic theories and treatments discussions
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