Truly astonishing. Inept and disquieting. As someone misdiagnosed with ME/CFS this really gets my goat. I could quite easily have been labelled...
Thanks Kitty. Going to plan so far :)
Thanks @Hutan :) It was an unwelcome 50th birthday present :worried:
Hi, I'm not a member of BACME. I have attended several conferences in the past and fed back notes and comments. I am having treatment currently...
I'm assuming this is largely medical information written by medics? If it would be of value to include push back on some of the psychological...
It's repetition ad nauseum. No need to repeat. The evidence base for efficacy of duloxetine in FMS is modest but can help a bit for some (pain...
I'm reading Time to Think by Hannah Barnes which is an examination of the inside story of GIDS and goes into detail about the lack of evidence,...
Hmmm, the glutamate and NAA levels were found to be raised in pwME and LC so that kinda kicks their theory a bit more, maybe. :sneaky: I was...
"In ME/CFS, we found a positive association between glutamine and Cr+PCr levels and ‘physical activity’, indicating that lower physical activity...
And that would be sad. Can anyone comment on the method and cost of such a study? And whether this is something a neurologist would take interest in?
That'll likely look exactly like all the other poorly designed, inadequately measured (absence of the objective and real world measures) trials of...
Interesting to see this. I cannot comment on the method etc used but if replicated could make a lot of sense regarding patients symptoms...
" The primary outcome is feasibility and a range of participant outcomes will be assessed using a comprehensive range of questionnaires and...
" The trial population includes people with multiple long-term conditions, a population which often experiences a high disease and treatment...
Pretty much every scale like this used with pwME has a ceiling effect. Not much use. Fatigue severity scale a tad better but not much. Most...
"We propose an extension of the allometric aggregation method, which characterises the complexity of a physiological signal by quantifying the...
How can a diagnosis of FND be made with any certainty or accuracy? That's a non starter. FND is not defined by objective evidence. It's a...
I took it probably from memory about 10 to 12 times over 2 to 3 years. My records are in my attic and not accessible to check. I had reaction to...
What the heck do psychologists know about 'immune responses' or immunology. Not on my training or curriculum at any point. What immunologists...
Wow, that's quite some leap :banghead:
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