Yes thanks that makes sense but I can’t take it at that time unfortunately because the pain relief takes 3hrs to kick in so I have to take it 9pm,...
It may not be relevant, but sometime around 2010/2011 ish, there was some ringfenced funding from the MRC for research for us. I remember that...
thanks, so would it be the interferon that is (indirectly) causing the flu-like symptoms then?
I am not well enough to be able to read/study the thread & dont have a science background anyway, but am skimming, & its so heartening to watch...
Interesting because Gabapentin 700 late afternoon & 1200 at night (for something else), makes me feel 'better than i have done all day' in terms...
All this talk of afferent nerves & the spinal column... apologies if this is idiotic & totally unconnected scientifically but i wonder about the...
yes me too it certainly is, I'm not keeping up with the thread never mind all the science on it, but I'm fascinated by it all even if i dont...
oh yes. I get it pretty regularly when in deep PEM, no voluntary body movement whatsoever, except the eyes & breathing continues as normal. It...
Errr, so already cant get a GP appointment, not enough GPs.... so heres a good idea... lets give the ones we have, A LOT more to do. That'll help....
Ah, yes a very good point thank you. I'm new to smartphones & only view S4 through a laptop. I have edited my post accordingly
Wow i'd be really thrilled if a study like this could be done. Then we'd know once and for all! For those it helped we might be able to elucidate...
Just flagging this up for you @Aldebaran's Star just in case it'd be of interest to you :hug:
no mention of the LP? I was under the impression they said it was that that caused her recovery... oh but then it was the discovery it was really...
Thank you @Simbindi & @Kitty that has enebled me to come down off the ceiling somewhat!
Oh goodness, I tried not to look at the suggested reforms, but i did look. Am very scared & its unclear. I cant understand whats going to happen...
Indeed. I think this is what drives the ideas of conversion disorder (psych) or unconscious secondary gain causing a behavioural & then...
I'm sorry i am too ill to read past page 1 so this might be redundant or repetetive. I trust it be ignored if so This is my experience exactly....
Good luck! I have found that if you put them in & leave them to soften in the warmth of the ear a little while & then jiggle them in jiggling &...
Sorry @Trish I realise you heard me say all this before, perhaps you wanted to hear from others instead :rolleyes: I have spent my energy ration...
Also I can read for 20mins in silence when well rested, & on it's own will not trigger either PEM or immediate collapse/symptom increase. But I...
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