The other thing of course is that they seem to be oblivious to the cumulative effects of activity. So in section 7 adding in a baseline for each...
well of course not... that would be to 'medicalise' ME/CFS :rolleyes:
wondering how you got on Kitty? no pressure to share of course :)
indeed. my surgery sent a referral to a specialist recently (for colonoscopy) and on it there was a section for 'mobility', they filled in 'no...
All i can say is i hope nobody ever asks me to fill out this patronising, absurd document. Its written for the DWP. I may as well just send you...
Its the misinterpretation of normal sensations that gets me the most tbh... i mean sure everyone feels exhausted & aching after they do more than...
Oh i think they mostly believe that we are having a real experience, so if we say we're in pain/fatigue its because we are feeling pain/fatigue,...
theyre disabling merely because the person believes they are (nocebo effect), and then they rest more & more, leading to more & more discomfort...
It is typical of their 'logic'... one is supposed to be simultaneously avoidant/phobic & 'doing too much' of a thing so that advice is needed to...
ah, sorry MrMagoo, i'd taken a break from the thread so i was a bit disoriented there. lol impossible! :D
my bolding lol its still 'going around'... there is no 'at the time' about it! I have been told such things consistently throughout my 23yrs of...
wow that looks really good, thanks so much for doing it, it will be so useful. People spout the NASA studies to me on occasion so i have...
sounds intriguing.... do we have a link to the phase II trial? Is it's mechanism plausible @Jonathan Edwards ?
Yes & since advocacy efforts in general are often still focussing on whether it's "real" or not, its hardly surprising that when the drs said...
yes exactly, do you know, in 23yrs of having ME i never even articulated that fact even to myself. @Robert 1973 do you mind if i use your...
Oh my goodness! this this exactly THIS!!! I often think that i wish i had a word for my so called "resting", because its not 'resting'.......
agreed. And you know it IS interesting Kitty, because now i'm thinking about my cog difficulties in terms of mental capacity.... it NOT actually...
Actually this is a very good description, one i will use with new carer at beginning. Although, sadly many carers/nursing staff have no compassion...
Yes this its what its like for me during PEM - when the carer arrives i can whisper, but then they keep expecting you to be able to whisper a...
Yes i have often remarked that when in PEM stairs feel like the 'north face of the Eiger' - requiring more strength and stamina than i have even...
Separate names with a comma.
